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Support for caregivers

Pancreatic Cancer | Last Active: 2 days ago | Replies (17)

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@mjh1967

Iam new to this site... I just want to admit... I feel helpless.... we are 5 months in.... its very hard to see my once very strong, independent husband so fail and helpless... I try to be the strong one, but I dont exactly know how... he has ALWAYS been the strong one in our marriage of nearly 40 years.... I am scared to leave him out of my sight for one second... Iam screaming and crying inside, but try to not let him see me cry..... Can anyone give me some advice?

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Replies to "Iam new to this site... I just want to admit... I feel helpless.... we are 5..."

I'm sorry you and your husband have joined this club. It is sad and scary. My husband was white water kayaking and skiing and backpacking... often the strongest in our group... and now can barely walk across the room. Spends most of his time watching tv as getting off the couch is a chore. I wish I had magic words for you, but like you, after finding him on the floor a few times, I am afraid to leave him alone. I just got a walker for him that he has not used yet, but the day is coming. My only advice is to keep pushing the doctors if you think things are not happening within a reasonable time period. I can send messages to the doctors through the hospital portal and I have done that to make sure they are aware of his rising CA19-9 numbers... and let's make an appointment for a scan to see what is going on. He has 4 MRI's and a CT scan scheduled for next week along with chemo and several doctor appointments. Town is an hour+ away... but that is ok. I want the doctors to stay on top of this. I recognize that I need to be the strong one in the house now as it is just my husband and our dog. But it sure was easier when Dan was the strong one.

You will start to get stronger because you have no choice. My husband of 38 years did everything for me. After a year of this journey I am doing most everything...some things I didn't think I could. I have found that doing things keeps me busy which helps...he is still my rock and i love him more than life itself. Our roles have changed but my hope is that it will swing back and he will get stronger. May God keep us all well.