← Return to Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Discussion
Comment receiving replies
@audreyzm

Was diagnosed with SMZL in 2022. Was treated with rutiximab with complete response however still had severe pain kept telling doctor something was stuck. Doctor dismissed me. I found rare cancer center near me and they recommend a splenectomy. They removed in march 2023 spleen was stuck to my diaphragm. Was recently diagnosed with nodal marginal zone lymphoma and just completed radiation. Has anyone had a 2nd MZL diagnosis. The radiation fatigue is the worst.

Jump to this post


Replies to "Was diagnosed with SMZL in 2022. Was treated with rutiximab with complete response however still had..."

@audreyzm While you’re waiting for other members to reply about a 2nd diagnosis for MZL, I wanted to welcome you to Mayo Connect. I’m sorry you’ve had a double whammy with this disease after having such a positive response with the Rituximab for the first diagnosis.
But what a crazy story with your spleen! Kudos for pushing to get answers for that unexplained severe pain. You know your body better than anyone else and it was telling you something was definitely not right! I have to know, did you ever report the findings to the doctor who was so dismissive about your pain?
I hope you recover quickly from your radiation treatments. The fatigue should slowly disappear within a couple weeks. Rest often, eat healthy proteins, fresh fruits and veggies high in antioxidants and drink plenty of water daily…aiming for at least 64 ounces. Was the radiation localized?