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Has anyone really gotten over CIDP?

Autoimmune Diseases | Last Active: Feb 28 11:07pm | Replies (62)

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@jsh468

Im here ten months later and waiting to finally see a neurologist in March. I’m in so much pain. All my symptoms started immediately after a surgery late May 2024. After what I believe now were several red herrings I will see a neurologist. I suspect CIDP because of the symptoms, onset, progression. The last month has been a drastic decline I believe due to significant external stressors. I’m scared. I know doctors don’t love when patients diagnose with Google so I’m on the fence about mentioning my suspicion of CIDP mostly because if I’m wrong I don’t want to bias the neurologist. Thoughts? Thanks for this post and to the folks who commented on it and I hope you’re all finding some relief.

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Replies to "Im here ten months later and waiting to finally see a neurologist in March. I’m in..."

Welcome @jsh468, I'm sorry you haven't had any answers yet from the doctors you've seen following the surgery. I think I would try and plan your conversation with the neurologist so that you can explain when the symptoms first started and how they have progressed possibly due to significant external stressors. There is a great website with some tools to help you plan your conversation with the neurologist (or any healthcare appointment) that you might find helpful.

Tools for the Healthcare Visit: https://www.patientrevolution.org/tools

When is your appointment with a neurologist? Can you let us know what you find out?