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@ksyren

I am 79 with ET JAK2+ diagnosed in the fall of 2024 after a serious bout of multiple pulmonary embolisms in the summer. I too have chosen not to broadcast my journey. I'm very carefully guarding what goes into my ears, as this is a faith journey as well as a medical journey for me. What goes into my ears impacts my thoughts and then my feelings and I most definitely don't want to fall into the sympathy pit. It becomes addictive in the worst possible way. I need positive energy in order to carry out the purposes put before me to accomplish. I take my HU and go about my business. My first oncologist said "live your life." And while I eventually changed docs, I have hung onto to those words. Thank you for sharing your journey to date!

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Replies to "I am 79 with ET JAK2+ diagnosed in the fall of 2024 after a serious bout..."

"Live your life" is difficult when first diagnosed. I've just started short term disability- seems like Groundhog Day on repeat after working full time for decades. I do get tired and rest- also, have appt days two/three days a week with bloodwork & treatment.

😊