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@pixiesusan

I'm confused about who to tell, to be honest. I did tell my daughter and brother. I told a few friends a lite version of what is going on only to hear: "you look fine." Huh? What does that have to do with anything?

I feel I have to tell some people. I have a group of friends from elementary school, and we have a yearly girls' weekend each year. Those weekends are filled with one activity after another, and I can't keep up anymore. So I had to tell them something. Now they are going to visit me this summer, which I have mixed feelings about. I really like them, so I'm glad to spend some time with them, and this may be the last time I can do this. But I'm also stressed about what we are going to do.

Oh and @kayabbott I found out 20+ years ago I had Celiac and for the most part everyone knows only because I do go out with them or over to their homes for dinner and I'm not willing to get sick!

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Replies to "I'm confused about who to tell, to be honest. I did tell my daughter and brother...."

I would probably look for online groups, similar to this Mayo forum, with which to talk with others. If you have trusted friends/family to talk with about what to share, that is an option. If your doctor's office has a group therapy/discussion option that can be useful. I had a moderate TBI (traumatic brain injury) 31 years ago and joined a similarly-dented group for several sessions (the closest I've come to "One flies over the cuckoo's nest" because we were all stuck). Regarding celiac, I still travel and do stuff with friends, but bring my own food it isn't otherwise safe.