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@katgob

treehouse5437
Reading your post i wondered if you are at the very start of treatment or have a diagnosis. For me, I only told my good friends, and my immediate family of my siblings. I was not choosing to tell my friends network and ask my trusted friends to not share it. I watched others post on social media the cancer story, the updates, and I felt i did not want a forever timeline of my personal journey and i ask those i told to not post anything. It worked, they did not.
I had breast cancer in 2021 and MDS in 2024. It is my journey. My BC chemo journey was in late 2021. We still were working from home in August of 2021. It was easier to not tell people. I wore cute beanies from headcovers.com, so my zoom look was good.
With MDS and my hair loss, the sadness over losing my long red hair of 40 years was gone. I had hair that just hit my shoulders right before the MDS diagnosis and once my hair fell out, I just went back to the beanie with a rosette. I also realized the need to wear a wig left me. I still worked from home, so right now, my hair has grown as a friend said, to an Annie Lennox style. By the time i go back to work with very short hair, no one will have seen me with the long hair in over 5 years. The last time they saw me in 2023 i had near shoulder but i wore collections of hats. I still have those hats too and will start them again in April when i go back to work.
Keep your Hope alive and know a day at a time it will unfold how you wish to live and share this journey.

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Replies to "treehouse5437 Reading your post i wondered if you are at the very start of treatment or..."

I am 79 with ET JAK2+ diagnosed in the fall of 2024 after a serious bout of multiple pulmonary embolisms in the summer. I too have chosen not to broadcast my journey. I'm very carefully guarding what goes into my ears, as this is a faith journey as well as a medical journey for me. What goes into my ears impacts my thoughts and then my feelings and I most definitely don't want to fall into the sympathy pit. It becomes addictive in the worst possible way. I need positive energy in order to carry out the purposes put before me to accomplish. I take my HU and go about my business. My first oncologist said "live your life." And while I eventually changed docs, I have hung onto to those words. Thank you for sharing your journey to date!