Tymlos cost

Posted by yogagirl57 @yogagirl57, Oct 26, 2024

Hello! I just was recommended Tymlos from my Endo. Can anyone tell me how much or if it is covered by insurance? I have Blue Cross Blue Shield Federal. TIA.

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@oopsiedaisy

I was on Fosamax for over five years. I fractured while on it, I believe partly due to Fosamax shutting down all bone remodeling resulting in older, dryer, and more brittle bones.

My rheumatologist was not concerned in the least about the gap, which was nearly three months. Nor was she concerned about the fact that bisphosphonates reduce the efficacy of anabolics like Tymlos and Forteo due to the release of the bisphosphonate when bone remodeling restarts. The bisphosphonate is reaborbed by the bone which then inhibits bone remodeling again.

I am switching doctors in the near future to an osteoporosis clinic as I’ve realized from reading the experiences here that I need a plan for the rest of my life that includes multiple components (medication, diet, exercise, supplements, etc) and my current doctor is uninterested in any of these.

My teriparatide is scheduled to arrive tomorrow. It will be interesting to see how it compares to Tymlos. I had few side effects from Tymlos but it did have one side effect I found difficult and that was extreme constipation despite my being on a very high fiber diet due to a family history of colon cancer and some precancerous polyps on recent colonoscopies.

I wouldn’t consider Fosamax a good starting option if your doctor thinks you need to build bone. Fosamax will not do that for you. You may see an increase in bone density because it shuts down bone resorption to start but that will eventually slow down or stop. I had a gain for two years but then it stopped.

If you have acid reflux then Fosamax would not be a good idea, in my opinion. I never had the side effect that others experience with acid reflux and Fosamax which appears to be awful.

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@oopsiedaisy

You have been through so much frustration with docs and insurance! I pray you will find a good fit doc-wise and have smooth sailing from here on out!

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@oopsiedaisy

Like you, Cigna said no to Tymlos for me (I had been on it for five months), but yes to generic Forteo. I will receive my first pen later this week. How has your experience on it been?

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@babbsjoy

@oopsiedaisy

Like you, Cigna said no to Tymlos for me (I had been on it for five months), but yes to generic Forteo. I will receive my first pen later this week. How has your experience on it been?

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I wish I had good news but I stopped taking the generic Forteo last week because I developed severe joint pain. It was so bad I was no longer able to exercise; even walking hurt. This is very unusual for me as I've been exercising 5-7 days a week since 2012.

I've been off now for about 5 days and the joint pain has almost gone. I still have a bit in my left knee.

I've read that this is a common side effect in approximately 10% of patients.

Will be visiting my doctor to discuss soon.

The Tymlos didn't cause this issue at all but I did have some other milder side effects. I'm getting weary of all the changes to medications and dealing with insurance companies and specialty pharmacies.

I may take a break until my next DEXA and see where I'm at. Now that I've been off the Fosamax for a year hopefully I will get back to building some bone.

I hope the Forteo works for you and thank you for asking!

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@babbsjoy

@oopsiedaisy

You have been through so much frustration with docs and insurance! I pray you will find a good fit doc-wise and have smooth sailing from here on out!

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I am sorry that I missed this earlier. Thank you so much for your kind thoughts.

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@oopsiedaisy

I wish I had good news but I stopped taking the generic Forteo last week because I developed severe joint pain. It was so bad I was no longer able to exercise; even walking hurt. This is very unusual for me as I've been exercising 5-7 days a week since 2012.

I've been off now for about 5 days and the joint pain has almost gone. I still have a bit in my left knee.

I've read that this is a common side effect in approximately 10% of patients.

Will be visiting my doctor to discuss soon.

The Tymlos didn't cause this issue at all but I did have some other milder side effects. I'm getting weary of all the changes to medications and dealing with insurance companies and specialty pharmacies.

I may take a break until my next DEXA and see where I'm at. Now that I've been off the Fosamax for a year hopefully I will get back to building some bone.

I hope the Forteo works for you and thank you for asking!

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@oopsiedaisy

Oh no! I am so sorry the Forteo didn’t work for you. I understand your frustration with insurance, changes, etc. The whole thing just blows my mind. I had no idea all this kind of stuff was taking place. It’s hard to believe that our health decisions can be so influenced by insurance companies rather than doctors!

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