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What helps longhaulers dealing with Chronic Fatigue?

Post-COVID Recovery & COVID-19 | Last Active: Mar 29 8:45pm | Replies (36)
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@carlosmayo

Hi. Yes you can take the two together. My Stanford LC/ME/CFS clinic started me on LDN and after a number of months the dose settled at 3mg/day. They then started me on Abilify - again at a very very low does (0.1mg/day) and had me slowly work up. I have been taking the two together ever since ... now two years. For the first year and half my health improved about 80%. Then for unknown reason it got worse but I am still 60% better than I was - still a life changing improvement.
Happy to help with any more questions. Good luck to you.

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Replies to "Hi. Yes you can take the two together. My Stanford LC/ME/CFS clinic started me on LDN..."
rissanz | @rissanz | Feb 24 6:11pm

Thanks! That's great to hear. When I'm well I'm about 40% capacity now. I had a bit of relapse as I changed LDN from capsule to liquid. It seems liquid doesn't work for me.

Anyways, I'll stabilise on LDN capsule and ask my GP for new prescription. Would you know any research publication that talks about this protocol?

Are you taking any other medication or doing any treatment for fatigue or PEM?

Thank you!

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rissanz | @rissanz | Mar 11 7:09pm

Hi Carlos, my GP is looking to prescribe me Abilify. She was asking for the treatment protocol. You mentioned that you started on 0.1mg, how fast did you increased the dosage? Time and dosage wise.

And what's the dose you are taking now? I imagine, that like LDN, the sweet spot very variable per person.

Thank you!

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