Autoimmune Hepatitis and remission?

AIH is so hard to diagnose…I don’t understand why it’s not standard testing nowadays if you are having liver problems and they’re having a problem especially diagnosing. It took them about 4 years and 3 countries to figure out what I had. My pain started when I was in England…for a year it was bothering me there but no diagnosis of anything…except Lichen Sclerosis a different autoimmune…. Moved to Portugal another whole year of pain and in & out of hospital and they kept saying they couldn’t figure out the pain except I had a couple stones in my kidney but they were deep at the moment and shouldn’t be hurting. But possible they are. I kept going back they kept saying same thing. Moved back to America took two years to diagnose AIH but before they did all the tests, all the pain, but worst of all was the mental anguish of it all especially since the dr literally told me & my fiance that I was crazy and imagining the pain. I had mental health issues. Really???? Then he ran that ONE last test for AIH not that he thought I had it and BAM 💥 I was diagnosed with an apology. And it’s been a long road since! 😂 like i said I’ve been living with it now about 15 years or so. When I feel good I feel GOOD, when it’s acting up I feel like total 💩. It’s one way or the other there’s no in between.

Same here…they thought I had kidney stones, they took out one of my right adrenal gland and in the end, accused me of being a heavy drinker. I had a doctor point the finger at me and told me she thought I was lying, before running the test which was positive. No apology though. Do you have cirrhosis? Mine is stage 4, but haven’t had another biopsy since they diagnosed me. I go to Tampa General for my treatment which is only a couple hours away. My Meld score was so bad when they figured it out. There for awhile they thought I would need a transplant, but my numbers turned around. It’s nice to talk with someone dealing with the same issues. Thank you for this. I really appreciate it.