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Does anyone have HHT? Hereditary Hemorrhagic Telangiectasia

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (11)
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@pendutchgal

Hi, new to the group here. Originally diagnosed with HHT around 2019. Have had fairly severe nosebleeds since a young child. Also have an extensive family history with this disease. It seems like just recently doctors take it seriously.
Now experiencing GI bleeds too. Anyone out there have experience with treatment for that?

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Replies to "Hi, new to the group here. Originally diagnosed with HHT around 2019. Have had fairly severe..."
Colleen Young, Connect Director | @colleenyoung | 5 days ago

Hi @pendutchgal, welcome. I'm bringing in fellow HHT-ers like @heathshan @olivine @amartin945 to share their experiences too.

@pendutchgal, how did you discover the GI bleeds? Are you experiencing anemia? What treatment has been suggested for you?

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