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DiscussionDoes Dr. Falkinham have anything to say about going on a river cruise?
MAC & Bronchiectasis | Last Active: Feb 26 8:05am | Replies (7)Comment receiving replies
Replies to "Scoop, I was dismayed reading this and sent off an urgent email asking Dr Falkinham if..."
My ID doc gave me great advice 7 years ago - "Bronchiectasis is a disease you live with, very few die from it. You have to live your life! Take reasonable precautions, take a deep breath, and get on with it!"
Live healthy, do your airway clearance, let the kids sit in the spray and relish the summer.
Pacathy I was an avid white water paddler until I was diagnosed with MAC in 2012 after recurrent pneumonias. Slowed down then mostly because of symptoms and treatments. Have always wondered but actually think I was infected by steam room use at the gym in the 90s. Who knows...but I miss being on the river and don't regret one minute! I hope to do a riverboat cruise if I can manage it.... Go for it.
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Sorry to be the one to burst your bubble on the rafting. There's so much to consider, such a bummer. Nonetheless, despite your frequent rafting trips you've stayed NTM free so you must be doing something right. I wonder if we keep up with dedicated airway clearance if that helps protect us from the various bugs. Stands to reason. Maybe there's research out there that documents this?