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Post prostatectomy: What do rising PSA levels mean?

Posted by hoard @hoard, Sep 10, 2019

New to group! Wish I had checked this out 2 years ago while supporting my husband! Now over e years post prostatectomy, wondering what might make psa go from all 0 to 2.6...

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heavyphil | @heavyphil | 8 hours ago
In reply to @conchman "Wojo , Follow the Drs that you’re working with. I had RP removal and margins were..." + (show)
@conchman

Wojo ,
Follow the Drs that you’re working with. I had RP removal and margins were clear……… for 6 years. The numbers started rising. 39 treatments of radiation treatments. That was in 2020. Sorry to say , buts lots of issues followed 2 years later. I would ask about ANY type of alternate therapy to radiation IF it comes to this later. Sorry this is so negative , but just want to stress to look at options versus automatically going with routine radiation. Best of luck to you.

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Hey conchman, We are in similar situations in regards to RP/ salvage tx.
What alternative other than ADT - which has it’s own set of side effects - are there? And I don’t mean diets, supplements or any of the non medically approved regimens out there. Thanks!
Phil

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conchman | @conchman | 7 hours ago
In reply to @heavyphil "Hey conchman, We are in similar situations in regards to RP/ salvage tx. What alternative other..." + (show)
@heavyphil

Hey conchman, We are in similar situations in regards to RP/ salvage tx.
What alternative other than ADT - which has it’s own set of side effects - are there? And I don’t mean diets, supplements or any of the non medically approved regimens out there. Thanks!
Phil

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Hi Phil,
It’s been a while but have read of cyrogenic options and obviously the seeding with radioactive seeds. The cryogenic seemed to be very new back in 2014 when I had my radical prostatectomy. Al

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heavyphil | @heavyphil | 5 hours ago
In reply to @conchman "Hi Phil, It’s been a while but have read of cyrogenic options and obviously the seeding..." + (show)
@conchman

Hi Phil,
It’s been a while but have read of cyrogenic options and obviously the seeding with radioactive seeds. The cryogenic seemed to be very new back in 2014 when I had my radical prostatectomy. Al

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I don’t believe cryo is an option for salvage treatment and he has no prostate so seeds are out too. Only option left is some form of EBRT

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conchman | @conchman | 4 hours ago
In reply to @heavyphil "I don’t believe cryo is an option for salvage treatment and he has no prostate so..." + (show)
@heavyphil

I don’t believe cryo is an option for salvage treatment and he has no prostate so seeds are out too. Only option left is some form of EBRT

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Hi Phil, sorry I must’ve misread or didn’t understand that you have already had prostate removed. I am guessing the EBRT therapy is probably what I had also without looking everything back up. The only thing I can add then is I ended up with 39 treatments at Mayo Clinic in Rochester. The conversation was deeply about avoiding critical areas and they felt they could limit exposure. But as I learn where the targeting was it affected my bladder neck extensively. I don’t know if I really want to share everything as it doesn’t help you with any positive thinking. I will answer any questions the best of I can as long as you ask. I will be celebrating my 64th birthday in March. Currently scheduled to have ileal conduit surgery on Friday. In a way I am so looking forward to the surgery to get things back to normal. Again, ask anything and I’ll do my best.

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