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DiscussionAnyone dealing with UTUC (Upper Tract Urothelial Carcinoma)?
Bladder Cancer | Last Active: Apr 28 6:53pm | Replies (12)Comment receiving replies
Replies to "I have not had Jelmyto procedure. My next URS is on April 16. Will update any..."
Another small tumor (1cm and looks like recurrence) ablated in right ureter on 4/16/2025. Followup today 4/28/2025. This is 5th time tumor has been ablated. I tolerate this procedure really well with no complications. Dr still suggests ablating tumors vs Jelmyto treatment. He did state that maybe when I am 80 and can't take ablation any more, Jelmyto would be appropriate (I am 73). Have decided this could be my new norm every 6 months have a tumor ablated. So plan is CT urogram and cystoscopy in 3 months and go from there after reviewing urogram. Going into my 3rd year with this and research seems to indicate recurrences may slow down. Understand that I have no pain or bleeding. Wishing everyone with this diagnosis healing and peace.
Thanks for the update. Wish you best of luck. I am kind of worried about this nephrostomy tube and stay minimum 6 weeks. Mentally getting ready for 6 weeks but NOT for one year treatment recommended.