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Undifferentiated Pleomorphic Sarcoma: Anyone else want to share?

Posted by me67 @me67, Mar 3, 2017

I have been diagnosed with pleomorphic sarcoma. Is there anyone on this site that has had this cancer or has it now? I would like to talk to you. Thank you

Interested in more discussions like this? Go to the Sarcoma Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 23 11:51am
In reply to @chocho "Wow! I have recently been diagnosed with pleomorphic myxoid spindle cell neoplasm. Meeting with surgeon on..." + (show)
@chocho

Wow! I have recently been diagnosed with pleomorphic myxoid spindle cell neoplasm. Meeting with surgeon on Monday. Just wondering how it worked out.

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@chocho, just checking in. How did your appointment with the surgeon go? What is the plan? How are you doing?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 23 11:53am
In reply to @janiemae "My husband was diagnosed with undifferentiated pleomorphic sarcoma on January 27th in his right bicep, which..." + (show)
@janiemae

My husband was diagnosed with undifferentiated pleomorphic sarcoma on January 27th in his right bicep, which is huge. He starts radiation at Mayo Rochester on Monday, February 17th. Radiation 5 days a week for 5 weeks.

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@janiemae, how did the first week of radiation go?

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janiemae | @janiemae | Feb 23 8:33pm

It went ok. By the third treatment I noticed some coughing at night, diminished appetite, nausea, and sleeping more. We live about 5 hours from Rochester so we decided to go home for the weekend. We got to spend time with our kids and grandkids. One week down! Yay! Thanks for asking

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arlin | @arlin | Mar 18 8:03am

My husband was diagnosed with pleomorphic sarcoma Feb 2024

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 28 11:49am
In reply to @arlin "My husband was diagnosed with pleomorphic sarcoma Feb 2024" + (show)
@arlin

My husband was diagnosed with pleomorphic sarcoma Feb 2024

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Welcome, @arlin. What treatment(s) did your husband have? How is he doing now? How are you doing?

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quichewithmayo | @quichewithmayo | May 23 4:40pm
In reply to @colleenyoung "Welcome to Connect, @me67. Thank you for starting this conversation about undifferentiated pleomorphic sarcoma. Hopefully by..." + (show)
@colleenyoung

Welcome to Connect, @me67.
Thank you for starting this conversation about undifferentiated pleomorphic sarcoma. Hopefully by starting this discussion, we will attract other people to join in and share with. While we wait for that to happen, I would like to connect you with other members who have rare sarcomas, albeit of different types. Please meet @udderplace who has liposarcoma, @brinys who has angiosarcoma and @deborahe who has cricoid chondrosarcoma.

Me67, can you tell us a bit more about yourself. When were you diagnosed and what treatment(s) have you had?

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This is definitely a tough diagnosis. I have searched for your responses and haven't seen anything. I certainly hope you are still alive and well. But this is potentially a death sentence (UPS). Hard words to say, hear, and accept.

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4mysis0617 | @4mysis0617 | Jun 17 11:05pm

My sister was just diagnosed with stage 4 UPS, has anyone gotten to that stage on here? What were your treatment options?

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