Bone density drugs

Posted by cooper78 @cooper78, Jan 20 9:06pm

Tried actonel, evista and evenity all with side effects serious joint pain and pain in leg bone and jaw with evenity. Really need some help for what to try as bone density has deteriorated. Thank you.

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@didamco

Yes they are - there are 4 Onero certified physiotherapists or physiologists in Sydney Australia not many for a large Sydney. As Onero originated in US I would have thought the program was well established there.

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I stand to be corrected - Onero originated in Australia not Usa !
check the Mayo clinic feed out which discuses Onero in USA - Jan 2024
it is headed
"Has anyone found an exercise based program proven to work?
Posted by ans @ans, Jan 21, 2024
This forum does not allow me to post links
There is an online course you can do as well if you do not live near a certified Onero therapist

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@cooper78

I am seeing an endocrinologist in Feb to review status and options! Think it will be helpful. Thank you!

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CONSUMER LAB: SUGGESTS THE FOLLOWING: THESE TWO ARE THEIR TOP PICKS:
THESE ARE SUPPLEMENTS NOT DRUGS:
SWANSON: Boswellia Serrata Extract-----Joint Health & Mobility
ANCIENT NUTITION: Multi Collagen-----Supports healthy skin, nails, joint & gut

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@didamco

I stand to be corrected - Onero originated in Australia not Usa !
check the Mayo clinic feed out which discuses Onero in USA - Jan 2024
it is headed
"Has anyone found an exercise based program proven to work?
Posted by ans @ans, Jan 21, 2024
This forum does not allow me to post links
There is an online course you can do as well if you do not live near a certified Onero therapist

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Yes, I saw a great interview with the Australian doctor who developed the Onero program and conducted the Lift More Trials. It is on a site called osteoboston.org

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@teb

Those are all really great suggestions to include in our diets but unfortunately, they won't build bone. If you are using tofu, check to see if it is coagulated with calcium sulfate if you are using it as a calcium source as the calcium content differs greatly. The soy isoflavones are helpful but the calcium content is important too, especially if by chance you don't eat dairy.

Depending upon the severity of bone loss, some combination of drugs (including HRT in that category) and targeted/safe exercise is usually necessary. There will be occasional stories of success building density "naturally" but it's not the norm. It's just the sequence of nature that in menopause we lose density. Some are slow losers, those with osteo are generally faster losers. I'm a very health conscious and active person and I tried to regain density by doing it all; walking with a weighted vest, dancing, organic targeted diet, weight training. I lost so much bone in my spine during that experiment and then realized I had to embrace pharmaceuticals and I'm so glad I did. I went on Forteo for 2 years which increased my spine density and I followed up with HRT which has maintained the gain. I was 62 at the time I started HRT and have been on it for 6 years. I've had no side effects on either. Well, one side effect...peace of mind that I am doing all I can to stem further loss. What a great side effect!

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@teb, could you please tell me what HRT (kind and dose) you are using? I find it fabulous that you have been able to maintain your Forteo gains by following with HRT alone.

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@bayhorse

@teb, could you please tell me what HRT (kind and dose) you are using? I find it fabulous that you have been able to maintain your Forteo gains by following with HRT alone.

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@bayhorse, I'm on transdermal estradiol. I was on .025 for the past 6 years but over the last several months, increased my dose to .05 as I was getting nervous over a reduction in density on a few vertebrae even though my overall T-score remained the same at 2.9. I don't understand that and my endo just blew it off saying it's an algorithm. I've used several brands of estradiol and find that I like Sandoz the best as it generally adheres better than the others and I find I have less itching from the adhesive. I was on 100 mg micronized progesterone until I increased my estradiol. They then increased my progesterone to 200mg.

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@maggiejpr

CONSUMER LAB: SUGGESTS THE FOLLOWING: THESE TWO ARE THEIR TOP PICKS:
THESE ARE SUPPLEMENTS NOT DRUGS:
SWANSON: Boswellia Serrata Extract-----Joint Health & Mobility
ANCIENT NUTITION: Multi Collagen-----Supports healthy skin, nails, joint & gut

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I have been using collagen type 1 and 3 for about 2 years!

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@loriesco

@cooper78 did you stay on them each for more than 2 months? I was told the side effects magically went away and they did for me! The statins were a problem, which I abandoned, but the bone meds side effects went away. My experience is that sometimes 'because we need them" it ramps up our immune system for a bit. I hope you work with an experienced specialist to guide you.

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Sorry meant to reply and lost track! I think the only one I did for two months was Evenity. With Evista about 2 weeks and joint aches so bad I thought I had developed RA and saw Specialist! Now with osteoarthritis I don’t want more joint issues!

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I understand your concern about osteoporosis medications and the side effects you've experienced. This is definitely a challenging situation that many people face.
Unfortunately, it sounds like you've already tried several different classes of bone-strengthening medications and experienced significant side effects with each one. Finding the right osteoporosis treatment that's both effective and tolerable can be quite difficult.
Some thoughts on your situation:
While I can't recommend specific medications since I'm not a medical professional, there are a few approaches you might discuss with your doctor:

Consider asking about denosumab (Prolia), which works differently than the medications you've tried
Discuss whether a lower dose of one of the previously tried medications might reduce side effects while still providing some benefit
Explore non-pharmaceutical approaches that might help alongside medication, such as weight-bearing exercise, calcium and vitamin D supplementation, and fall prevention strategies

For anyone tracking their physical activity as part of bone health management, like 2 miles for walk is better so it is about 4800 steps. (howmanysteps.net/2-miles-to-steps/)
I'd strongly recommend discussing these challenges with your doctor or perhaps seeking a second opinion from an endocrinologist who specializes in osteoporosis. They can review your specific medical history, bone density results, and previous medication experiences to help determine the best path forward.
Would it be possible for you to consult with a specialized bone health clinic? Many larger medical centers have dedicated osteoporosis or metabolic bone disease clinics with specialists who have extensive experience handling complex cases like yours.

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@ronma

I understand your concern about osteoporosis medications and the side effects you've experienced. This is definitely a challenging situation that many people face.
Unfortunately, it sounds like you've already tried several different classes of bone-strengthening medications and experienced significant side effects with each one. Finding the right osteoporosis treatment that's both effective and tolerable can be quite difficult.
Some thoughts on your situation:
While I can't recommend specific medications since I'm not a medical professional, there are a few approaches you might discuss with your doctor:

Consider asking about denosumab (Prolia), which works differently than the medications you've tried
Discuss whether a lower dose of one of the previously tried medications might reduce side effects while still providing some benefit
Explore non-pharmaceutical approaches that might help alongside medication, such as weight-bearing exercise, calcium and vitamin D supplementation, and fall prevention strategies

For anyone tracking their physical activity as part of bone health management, like 2 miles for walk is better so it is about 4800 steps. (howmanysteps.net/2-miles-to-steps/)
I'd strongly recommend discussing these challenges with your doctor or perhaps seeking a second opinion from an endocrinologist who specializes in osteoporosis. They can review your specific medical history, bone density results, and previous medication experiences to help determine the best path forward.
Would it be possible for you to consult with a specialized bone health clinic? Many larger medical centers have dedicated osteoporosis or metabolic bone disease clinics with specialists who have extensive experience handling complex cases like yours.

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Very difficult to find specialized bone programs. If anyone knows of one, please advise. I’ve received zero guidance or help from my doctor.

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@tracyshepherd

Very difficult to find specialized bone programs. If anyone knows of one, please advise. I’ve received zero guidance or help from my doctor.

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Where are you Tracy?

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