← Return to Anyone want to talk about Myelofibrosis?

Discussion

Anyone want to talk about Myelofibrosis?

Blood Cancers & Disorders | Last Active: Apr 12 8:47am | Replies (166)
Comment receiving replies
@cher273

I am new to this site and having some difficulty following threads, but my husband was recently diagnosed with Myelofibrosis and we are not thrilled with the doctor we are seeing. We are in New York (LI) and just wondering if anyone on here has someone they think is good.

Jump to this post

Replies to "I am new to this site and having some difficulty following threads, but my husband was..."
ideachaser1 | @ideachaser1 | Feb 24 10:21am

There is a Facebook group called Myelofibrosis Support Group with almost 2000 members. If you don’t get an answer here I’m sure someone can help you there.
Good luck and God bless.

VIEW AND REPLY
Colleen Young, Connect Director | @colleenyoung | Mar 6 7:56pm

Welcome, @cher273. It's important to have confidence in your care team. If you would like to consider a second opinion with Mayo Clinic experts, you can self-refer here: http://mayocl.in/1mtmR63

What is the treatment plan for your husband as the moment? How are you both doing?

VIEW AND REPLY