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Anyone been diagnosed with complex regional pain syndrome?

Posted by angiel0076 @angiel0076, 4 days ago

I've been recently diagnosed and my health has declined rapidly and Im just looking to see if anyone else can relate or tell me their experiences

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mspeigle | @mspeigle | 3 days ago

Symptoms are variable among patients. My diagnosis was made 6 years ago after two lumbar spine surgeries so my symptoms are in my low back, buttocks, legs and feet. Improvement has been slow. I’ve tried every modality for pain and am currently planning an implant. My advice is to try to start/keep moving to maintain and build strength. Avoid dependence on opioids, sedatives and sleeping pills if you can. My symptoms have diminished somewhat but they still impact daily activity moderately. Ice provides the best pain relief for me so I keep frozen slippers and back pads in my freezer for use every day and sleep on an ice pack at night. I’m sorry you have to deal with this diagnosis. Hopefully you will get good medical advice.

REPLY
2 replies
jalo | @jalo | 2 days ago
In reply to @mspeigle "Symptoms are variable among patients. My diagnosis was made 6 years ago after two lumbar spine..." + (show)
@mspeigle

Symptoms are variable among patients. My diagnosis was made 6 years ago after two lumbar spine surgeries so my symptoms are in my low back, buttocks, legs and feet. Improvement has been slow. I’ve tried every modality for pain and am currently planning an implant. My advice is to try to start/keep moving to maintain and build strength. Avoid dependence on opioids, sedatives and sleeping pills if you can. My symptoms have diminished somewhat but they still impact daily activity moderately. Ice provides the best pain relief for me so I keep frozen slippers and back pads in my freezer for use every day and sleep on an ice pack at night. I’m sorry you have to deal with this diagnosis. Hopefully you will get good medical advice.

Jump to this post

I fell down stairs and fractured my right wrist in 5 places. Part way through my physio I developed CRPS, I became fearful, anxious, and couldn't bare to have anything touch my wrist area. My surgeon and physiotherapist diagnosed me and suggested Diclofenac cream for my wrist, specific exercises to do at home and a mild anti anxiety med.
After 6 weeks my responses became normal. I continue the meds.

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | 1 day ago
In reply to @mspeigle "Symptoms are variable among patients. My diagnosis was made 6 years ago after two lumbar spine..." + (show)
@mspeigle

Symptoms are variable among patients. My diagnosis was made 6 years ago after two lumbar spine surgeries so my symptoms are in my low back, buttocks, legs and feet. Improvement has been slow. I’ve tried every modality for pain and am currently planning an implant. My advice is to try to start/keep moving to maintain and build strength. Avoid dependence on opioids, sedatives and sleeping pills if you can. My symptoms have diminished somewhat but they still impact daily activity moderately. Ice provides the best pain relief for me so I keep frozen slippers and back pads in my freezer for use every day and sleep on an ice pack at night. I’m sorry you have to deal with this diagnosis. Hopefully you will get good medical advice.

Jump to this post

Welcome, @mspeigle. Great tips for managing persistent pain. You might also wish to follow the Spine Health support group here: https://connect.mayoclinic.org/group/spine-health/

Have you chosen which implant or started that process?

REPLY
1 reply
mspeigle | @mspeigle | 2 hours ago
In reply to @colleenyoung "Welcome, @mspeigle. Great tips for managing persistent pain. You might also wish to follow the Spine..." + (show)
@colleenyoung

Welcome, @mspeigle. Great tips for managing persistent pain. You might also wish to follow the Spine Health support group here: https://connect.mayoclinic.org/group/spine-health/

Have you chosen which implant or started that process?

Jump to this post

I have started process and have appointments for MRI thoracic spine and psychological evaluation. I have not discussed which implant but can do so at F/U appointment. Thanks.

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