← Return to Does anyone else have MGUS?

Discussion

Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 35 minutes ago | Replies (968)

Comment receiving replies
@pmm

@amyboylan1 @ladyesheryl

I found this helpful.
https://www.myeloma.org/what-are-mgus-smm-mm
After reading it, I realized that I needed to ask more questions next time I saw my hem/onc doc. I made a list and took it with me. I think I actually saw him wince when he looked up and saw me holding my notebook. Ha! But to his credit he sat down and answered all of my questions.
If your physician is not taking time with you to fully explain what's happening in your body, you need to get a second opinion and basically interview that doctor to see if it's a better fit. Run your questions by him or her.
Don't feel bad about having lots of questions. I freaked out when I was first diagnosed but three years out I'm feeling pretty confident that I have as good a handle on this as I need to have.
When do you see your hem/onc doctor next?

Jump to this post


Replies to "@amyboylan1 @ladyesheryl I found this helpful. https://www.myeloma.org/what-are-mgus-smm-mm After reading it, I realized that I needed to..."

I have blood taken and see her in June. I think she’s a good doctor and specializes in MM. I tried to get into Mayo but they rejected me saying I had a good doctor. Are you still n MGUS?

Thanks for contacting me. It really helps to connect with others. I feel pretty isolated with this.