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Low platelet count of around 120,000: What should be looked at?
Blood Cancers & Disorders | Last Active: Feb 24 12:16pm | Replies (16)Comment receiving replies
Good Morning all, yep the wait and watch can be unnerving but it is not a bad thing, since our platelets go up and down. Mine have been as low as 55 and as high as 82. My normal is 70. I go to onocologist/hemotologist every 4 months now. I have had 2 biospies and with the MDS diagnosis I have 2 gene mutations of SRSF2 and TET2. If I hurt myself yes I bleed badly and have to watch out for that. I bruise horribly and finally (hope I don't offend anyone) just tell people its rough sex. Funny not funny but hey got to keep the humor going. I do what ever I want, I tire easliy too, and you just have to listen to your body. I eat good, got a good weight and for a 76 year old lady I have lived with this stuff for many many years. Hang in there, don't over think it, God has us in the palm of his hand.
Blessings to all.
hollie
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I am 66 years young and was diagnosed with MDS syndrome #5 , I am asymptomatic tho, as I was diagnosed April 5, 2024. I go every other week for injections for red and white blood cells. My platelet count keeps going up and down too. I asked my oncologist if there was anything I could eat to make the counts go up and he said the Revlimed immunotherapy takes care of that.
I bruise real easy too and sometimes I don’t know how I get them? My doc did say I could live for another 20 years if I do what I’m told, and after 4 blood transfusions and 1 stroke, (not heart related, as my pcp gave me a 28 day heart monitor and my heart was in all the normal ranges). I believe I was getting too many injections, as I was going 3X every week from middle of April to end of September when I had my stroke.
I have a bad case of anxiety, because I still work full time as a health assistant in a public school with only 3 - 5 year olds.
They are what keep me going. My husband passed away almost 12 years ago from Lupus and a pulmonary embolism, as we did not know he had Lupus and he was a ticking time bomb. Lost him within 3 days of taking him to the hospital.