← Return to I have JAK2 ET and MPN: Anyone else have these symptoms?

Discussion

I have JAK2 ET and MPN: Anyone else have these symptoms?

Blood Cancers & Disorders | Last Active: 13 hours ago | Replies (67)
Comment receiving replies
@hudson2019

Good morning I have the CALR mutation. I think I'm going too try the IV Antibiotics with the Hyperbaric chamber any thoughts on the Hyperbaric chamber. I also think Stress plays into this, yes my Integrative medicine Dr thinks that might of flipped the Switch for me the Lyme Disease Cancer Dr says nothing, my wife passed away from Acute Myeloid Leukemia with a FLT3 gene in 2020, so I question a lot of things.

Jump to this post

Replies to "Good morning I have the CALR mutation. I think I'm going too try the IV Antibiotics..."
Lori, Volunteer Mentor | @loribmt | 13 hours ago

Hi @hudson2019 The use of hyperberic chamber treatments for Lyme’s diseases is gaining recognition. I live in an area of high instances of the scourage and have heard positive comments from the treatment. Instead of typing out what I know, I found a good article for you with all the information.
https://www.nationalhyperbaric.com/hbot-treatments-and-conditions/lyme-disease
I’m just happy you found a doctor who takes Lyme’s disease seriously. If you try the therapy, please report back on your progress!

I’m so sorry to hear that your wife passed from AML with FLT3 mutation. I had the same leukemia in 2019 and it was an incredibly challenging ordeal, including a bone marrow transplant. Despite efforts by both patient and supporting oncologists, AML-FLT3 can be a difficult disease to treat. I’m very sorry for your loss.
So you’ve been having to face your new health issues flying solo. Do you have a support system nearby with family and friends?

VIEW AND REPLY