Mast Cell and Jardiance

Posted by gak @gak, Feb 20 2:26pm

Has anyone experienced mast cell symptoms after starting Jardiance? My cardiologist prescribed Jardiance for heart failure (I do not have diabetes) and I have been experiencing diarrhea ever since. Also had a positive SIBO test.
Thanks for any information!

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How do you know its Mast Cell?

That can just be a side effect of the medication. Do you have diagnosed MCAS?

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No, I have not been diagnosed with mast cell. I am trying to find out what, other than SIBO, could be causing my symptoms.

Can you direct me to a source that says Jardiance can cause diarrhea?

Thank you

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@gak

No, I have not been diagnosed with mast cell. I am trying to find out what, other than SIBO, could be causing my symptoms.

Can you direct me to a source that says Jardiance can cause diarrhea?

Thank you

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SIBO can cause severe diarrhea till treated which takes weeks of meds. Start with your PCP. The way medical works these days it will go faster that way. Your PCP can do a lot and maybe test your stool, change to a new med and see if that stops it. SIBO meds are strong and can give you diarrhea as well. Good luck

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Mast cell activation was the root of my daughter's SIBO.

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Has she been able to find a solution? Is she taking any meds that work? Diet changes? Do you know if the remedies are permanent? Sorry for all the questions .....

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@ggr

Mast cell activation was the root of my daughter's SIBO.

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How are you diagnosed for Mast Cell.

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I have not been diagnosed with mast cell, just with SIBO, so I cannot answer your question. Others here might be able to do that.

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@mothermary1

How are you diagnosed for Mast Cell.

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It is not easy. Not many doctors are knowledgeable. She finally went to Scottsdale Mayo and was diagnosed with several autoimmune disorders that tend to go together. The doc is a neurologist, but many different kinds of doctors can if they are interested enough to learn about it. I mentioned in another post about a FB page that is not active but still online. They have a file of doctors' names who have been submitted by mast cell patients. They are shown by state.

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@gak

Has she been able to find a solution? Is she taking any meds that work? Diet changes? Do you know if the remedies are permanent? Sorry for all the questions .....

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I think you are asking about my daughter. The most helpful med has been Cromolyn Sodium taken before meals and at night. She also does not eat much at night. She finds that it is better to have the stomach more empty than not. She also takes antihistamines. I don't know which ones. She takes a lot of meds. Not all for mast cell. There is not a cute. It is matter of management. She avoids dairy and used to avoid gluten but seems to be able to handle some now. I know some people have a very narrow range of foods.

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@ggr

It is not easy. Not many doctors are knowledgeable. She finally went to Scottsdale Mayo and was diagnosed with several autoimmune disorders that tend to go together. The doc is a neurologist, but many different kinds of doctors can if they are interested enough to learn about it. I mentioned in another post about a FB page that is not active but still online. They have a file of doctors' names who have been submitted by mast cell patients. They are shown by state.

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I thought MCAS syndrome is not an auto immune disease. I’m 70 and have luckily made it through many surgeries and health events without meds. I’m so allergic to so so many drugs. I have to refuse and ride many things out without help. I’ve heard it can be MCAS but in all my years not one doctor has ever said a word. They simply say it’s a terrible place your in to get such severe reactions to so many class of drugs. They usually blame it on fillers so we try compound pharmacy places but that hardly ever works. It’s very scary to have so many allergies to drugs.

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