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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (346)
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@monicalu2626

Hi, thanks for sharing! I’m wondering if you did Rituximab maintenance, or are you doing Brukinsa instead? TIA

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Replies to "Hi, thanks for sharing! I’m wondering if you did Rituximab maintenance, or are you doing Brukinsa..."
mrgreentea | @mrgreentea | 1 day ago

Hi @monicalu2626, my doc started me with Brukinsa (aka Z) last June. I think my WBCs were around 60,000 at the time. I was dx'd with CLL,WM, and SMZL stage 4... He recently suggested that **I** might consider a BCL2 or a CD20 antibody (like rituximab, though he mentioned obinutuzumab) to "deepen the response". I don't feel I have enough info yet to make that decision myself...I'll discuss it again at my next appt in March.

I was really sorry to read that you had such a bad experience with rituximab!! It feels like we all need to play russian roulette with drugs on this journey. Always hoping for the best.

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