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I have JAK2 ET and MPN: Anyone else have these symptoms?

Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (67)
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@hudson2019

Hi I was Diagnosed with ET in Jan 24im on Hu 1000mg day I also was Diagnosed with Lyme Disease in May 23platelets over million than platelets now 665been treated For Lyme Disease oral Antibiotics for two months Lyme still there Dr Suggests intervenous Antibiotics with Hyperbaric Chamber 6wks. I have no Symptoms of either Disease but trying too get platelets Down and the Lyme Disease too.

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Replies to "Hi I was Diagnosed with ET in Jan 24im on Hu 1000mg day I also was..."
Lori, Volunteer Mentor | @loribmt | 1 day ago

Welcome, @hudson2019. You’re certainly having your share of medical drama the past couple of years. Lyme disease can cause huge variety of issues in the body so I’m happy to see that your doctor is taking this seriously. Lyme disease is finally getting recognition and treatments are more forthcoming.
It appears the HU is helping reduce your platelet level as anticipated. I hope you continue to improve and that the Lyme Disease treatments are successful for you. Did your doctor feel there was any correlation between the elevated platelets and Lyme or is the ET due to a genetic mutation such as the JAK2 gene?

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