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@maureengdds

Gosh, thank you so much! I had no idea there were NTM specialists. Do you any idea where to start? We live in Michigan.

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Replies to "Gosh, thank you so much! I had no idea there were NTM specialists. Do you any..."

@maureengdds the below list is from a website, ntminfo.org, for doctors in Michigan. Depending on where you are in the state, you may be closer to doctors in a nearby state (a general consideration, though perhaps less so with Michigan), so you can go to the website and look for other nearby states as well if that may apply to you. I have no personal experience with the below doctors (I live out west). Good luck! Not everyone tolerates the antibiotics (though many do) but sometimes it’s just one of the antibiotics that is the most problematic. You need a doctor well versed in NTM to help your mother sort it out. There are not a lot of NTM specialists, but they do exist. The “top tier” NTM specialists are likely National Jewish Health in Denver and Mayo Clinic (MN and FL). But many universities have medical facilities with NTM specialists, off the top of my head Oregon, Washington, Texas/Tyler, North Carolina. I know many here are treated at NYU-Langone. Nearest to you, it looks like Western Michigan University may have an NTM treatment program. Again, good luck. Please let us know how else we can help.

PIMPAWAN BOAPIMP, MD – INFECTIOUS DISEASE
Western Michigan University School of Medicine
1000 Oakland Dr
Kalamazoo, MI 49008
Tel 269-337-4300
VILMA DRELICHMAN, MD – INFECTIOUS DISEASE
22301 Foster Winter Drive, 2nd Floor, Suite 200
Southfield, MI 48075
Tel 248-552-0620
STEPHEN GALENS, MD – PULMONARY
Pulmonary & Critical Care Associates
44344 Dequindre Road, Suite 410
Sterling Heights, MI 48314
Tel 586-262-5100
50505 Schoenherr Road, Suite 340
Shelby Township, MI 48315
Tel 586-314-0080

Hello maureengdds-
Some good information for you so far on the thread.
If I may ask, because I may have missed it and it may help with further information...What did the doctor say the sputum tests indicated, the MAC strand that your Mother has? What is the specific name of the bacteria.? Was that indicated to you?
Barbara