Hi Lori, thank you for the quick reply.
Hello everyone!
It’s been difficult finding others who are living with SMZL. It’s sure a marathon, vs a sprint…and a bit of a mystery. I did read thru many of the posts. Very helpful.

I completed four weeks of Rituximab infusions on Jan 31. Unfortunately, I had a reaction during 3 of the 4 treatments- very scary! Thankfully the nursing team was always prepared and compassionate.
That said, I’m on a break for the month of Feb and will start up again on March 7. Depending on labs and scans, it may be that I’m starting maintenance every 2 months. Fingers crossed!
If not, we’ll figure out what’s next.

When I was finally diagnosed, after two years of trying to improve my anemia, unfortunately, my spleen had doubled in size and 70% of my bone marrow was involved. The fatigue!! and shortness of breath!! limited me to any kind of activity for only about 15 minutes at a time.
(my job requires a lot of travel, and often 15-20,000 steps a day)

Luckily, my system seems to be responding to the R.
Thanks for the welcome!