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Alternative Treatments for MAC: immunotherapy, etc.
MAC & Bronchiectasis | Last Active: Mar 5 11:19am | Replies (114)Comment receiving replies
Sorry to hear about your Mom.
What age group is your Mom?
Has your Mom had other chronic health problems in the last few years besides the mucus lung problem?
Is she able to do the huff coughing with airway clearance techniques considering all you have said?
It sounds like your Mom's Body Mass Index is low??? Building the BMI up is hard sometimes to do, but so very important....It goes along with keeping the immune system strong, as you probably know.
Wish there was a magic wand to help your Mom and us with all that she/we have to concern herself/ourselves with in dealing with it all, it isn't easy and especially hard when trying to get under control multiple concerns.
Hope suggestions given in this Mayo site will help.
Wishing you both all good answers that you have questions about.
Barbara
Replies to "Sorry to hear about your Mom. What age group is your Mom? Has your Mom had..."
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Hi Barbara!
My mom just turned 91. Up until last year she was swimming every morning and walking laps in the pool at the gym. She was 90 so it wasn’t marathons mind you but she was still strong.
She survived breast cancer twice. Both times over 25 years ago. Last year at this time I got the flu. She drove three hours to bring me flu supplies and communion because I missed church. So this weight loss and dramatic down turn came up pretty suddenly. Maybe the last 6 months. I know she’s lived a long life. Just hoping we could eeek out a bit more.
Thanks so much for commenting. I know she’s in Gods hands and those are some pretty powerful hands!! I appreciate the chat. Praying for everyone with this crazy MAC disease! Hoping they come up with a better treatment soon. I was thinking of immunotherapy, or hyperbaric chamber or designer T cells. This bug is so common. I don’t know if it’s strength comes from the bacteria itself or if it’s just its sheer numbers and how rapidly it multiplies.
Again, thank you for commenting. I truly appreciate it.