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Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: 1 day ago | Replies (95)

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@sushilover

I can’t speak to a medical definition of remission, but for me, it means that I am not experiencing daily issues from my condition. With the exception of one small flare up, my skin has been clear of the fissures and cracked skin since 2-3 months post my first rituximab infusion. My joints, primarily hands and wrists, have gone from an 8 or 10 out of 10 on the pain and swelling scale to a 1 or 2 at most. Most importantly, my ILD, which was mild when diagnosed (I had NO shortness of breath at all and was shocked to find that I had ILD) was arrested. I have not experienced any progression.

I hope that this explanation helps and that you a receiving proper care.

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Replies to "I can’t speak to a medical definition of remission, but for me, it means that I..."

Thank you for sharing! It helped me greatly. I feel you have given me some guide posts which I didn’t have. This is all so new. My hopes for you as well as everyone here is that wellness is a great part of all of our lives. I am feeling so much better than I felt a few days ago. Knowing I not alone in this has been so encouraging. Thank you all