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Waldenstroms Macroglobulemia

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (5)

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@suznsl

It truly is a confusing and complicated illness. My only symptoms were feeling like I wasn't getting enough oxygen when I was even doing my simple daily walks. But when hiking up a hill, took a big toll on me, my friends insisted I go to the doctors. I was found to have WM, MYD88, and hyperviscosity syndrome. Things slowly got worse, where I felt like I was walking drunk and having to hold onto things. Dizzy spells and morning headaches. But thankfully that's all. They did get worse and I had to check myself into the ER. They did plasmapheresis and I was a whole new person. 2 of those treatments then started on Imbruvica and no more symptoms. Only been on it two weeks but so far no side effects. I'm feeling great! And I pray that you get to that point too.

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Replies to "It truly is a confusing and complicated illness. My only symptoms were feeling like I wasn't..."

Thanks so much for sharing your experience---this is so, so helpful. I hope you continue to feel great and sending big hugs!