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Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: Apr 11 12:53pm | Replies (101)

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@sushilover

Yup. I have it too. Female, 62yo. Diagnosed (and treated) after 6 rheumatologists misdiagnosed and mistreated me for 5 years.

Fortunately, I am a bulldog and have an equally tenacious doctor who cracked the code before very serious lung damage done. Impacted joints, skin, lungs. Experienced fatigue and raynaud’s. Am anti JO1 positive.

Had been on a number of medications prior to proper diagnosis. Now treated with two rituximab infusions two weeks apart, twice yearly. I would say I am in complete remission and want it to stay that way. I guess one advantage that I seem to have had is that I am fit and am exercise nut, which seems to have helped. My two worst symptoms were terrible Mechanics Hands and small joint arthritis. All ok now!

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Replies to "Yup. I have it too. Female, 62yo. Diagnosed (and treated) after 6 rheumatologists misdiagnosed and mistreated..."

First of all, thank you everyone for sharing your experiences with me/us. Life seems a little easier when you know you are not alone on your journey through. I am grateful and inspired by you all. Question 🙋‍♀️ does being in remission take all the symptoms away or just make them more manageable?

I am 66 yr man. Diagnosed with AS & IBM- (Inclusion Body Myositis)- both muscle related . Am retired from a physical & office type job. In wheelchair. Also take celcept. Does anyone else have same type condition? Any walking issues? My doctor in Boston - Mass General Brighams, said it is rare to see both together- AS & IBM.