My right diaphragm has been paralyzed now for 6 years with no known cause. Doctors assume that it is related to my Thoracic Outlet Syndrome, but I have been handling that for 35 years, and the diaphragm started 6 years ago. I have been assuming phrenic nerve damage, but after reading these posts, and seeing it can be caused by other things has me wondering. I will look into the FB page, and getting an EMG, if that is possible.

My main question is this...does anyone have any severe pain associated with their paralyzed diaphragm and/or phrenic nerve damage? I have a pain that started at the exact same time that I started having the symptoms of difficulty breathing. The pain is on the back of my shoulder, but more between the base of my neck and my shoulder. I have been cleared by an Ortho, so I know it is not that. It hurts all the time, and is worse when I breath deeply, or have to hold my breath. I can deal with the diaphragm and breathing issues itself, but this pain is terrible, and no doctors I have met with seem to care about it because they are distracted by the diaphragm or my TOS.

Any help is greatly appreciated.