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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (346)
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@stanleykent

monicalu
Hello... I'm glad you have reached the SMZL group.
Welcome and if you would like, share your experiences and diagnosis. As well as any questions you may have. There is a lot of information in the previous pages of this forum. As you will read this and what interests me is that SMZL sure seems to be different for everyone. The symptoms, tests performed, test results, diagnosis, and treatment sure seems to vary quite a bit.
Wishing you the best...

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Replies to "monicalu Hello... I'm glad you have reached the SMZL group. Welcome and if you would like,..."
monicalu2626 | @monicalu2626 | 3 days ago

Hi, my diagnosis involved bloodwork, a full body X-ray (originally thought I had Multiple Myeloma because of a heavy Lambda light chain and some other anomalies), a Pet scan (where we saw that there was no node involvement), and a bone marrow biopsy and aspiration. My doc still says that we may never have an exact diagnosis but the majority of my data indicates SMZL.
Hope you are finding your way.

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