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MDS 80 yr old male

Blood Cancers & Disorders | Last Active: Feb 21 6:33am | Replies (12)

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@dancouclanel4

I witness so many with this disease that are hungry for hope and encouragement. While I fought several months I remember feeling the same way. In May 2023 my oncologist informed me I had 12 months OS (overall survival) from that date I had loads of transfusions keeping me alive when my blasts exceeded 20% to AML. I am a Christian, a Catholic, knowing God's finger prints are on my journey...forever grateful.
Today my oncologist calls me his star patient. I am humbled...so want to share to those who need inspiration to fight on.

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Replies to "I witness so many with this disease that are hungry for hope and encouragement. While I..."

@dancouclanel4 I’m seriously moved to tears reading these 3 replies from you of your life and your incredible spirit of endurance! First, let me thank you for your years of service to our country. You’ve lead and are still living an amazingly rich and full life journey! I just felt there was more to your story and I so appreciate your sharing all of this with me!

Your MDS/AML experience is a huge inspiration after all that you’ve gone through and endured. Just a few years ago, there weren’t many options for those of us ‘in a certain age group’ if we couldn’t tolerate the more aggressive chemo or be a candidate for a BMT. What you’ve shared here is hope!

So again, I thank you for sharing your very positive experience with Vidaza and Venetoclax to the group. I hope you’ll be a regular contributor here! You’re not just a star patient with your oncologist. You’re a shining star in Connect too! ✨
Good luck with your run for city council! Let me know how it turns out for you, ok?