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← Return to MDS 80 yr old male
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I witness so many with this disease that are hungry for hope and encouragement. While I fought several months I remember feeling the same way. In May 2023 my oncologist informed me I had 12 months OS (overall survival) from that date I had loads of transfusions keeping me alive when my blasts exceeded 20% to AML. I am a Christian, a Catholic, knowing God's finger prints are on my journey...forever grateful.
Today my oncologist calls me his star patient. I am humbled...so want to share to those who need inspiration to fight on.
Replies to "I witness so many with this disease that are hungry for hope and encouragement. While I..."
@dancouclanel4
Hello, I’ve just been diagnosed with “early MDL” after chemo treatment a year ago for Large B cell lymphoma. Just had bone marrow biopsy, lymphoma in remission but they found early MDL. My oncologist said no treatment needed to enjoy my life. Of course felt incredible fear the first week. God has given me peace and believing for healing. I’m on watch and wait, they will monitor. I currently feel great, walk several miles. I do have phlebotomy as I have too much ferritin.
Wow did this diagnose knock me off my feet, wasn’t expecting. I’m glad I found this site to learn more. I truly rely on God for my time on this earth not the doctors report.
Staying in faith, God bless all on this site with his strength and peace. 🙏
Connect
@dancouclanel4 I’m seriously moved to tears reading these 3 replies from you of your life and your incredible spirit of endurance! First, let me thank you for your years of service to our country. You’ve lead and are still living an amazingly rich and full life journey! I just felt there was more to your story and I so appreciate your sharing all of this with me!
Your MDS/AML experience is a huge inspiration after all that you’ve gone through and endured. Just a few years ago, there weren’t many options for those of us ‘in a certain age group’ if we couldn’t tolerate the more aggressive chemo or be a candidate for a BMT. What you’ve shared here is hope!
So again, I thank you for sharing your very positive experience with Vidaza and Venetoclax to the group. I hope you’ll be a regular contributor here! You’re not just a star patient with your oncologist. You’re a shining star in Connect too! ✨
Good luck with your run for city council! Let me know how it turns out for you, ok?