I have had SFN for over 20 years caused by Lyme Disease but was only diagnosed 5 years ago through a biopsy. The biopsy was finally done by my neurologist and they took samples from my leg in three places. The biopsy was not a good report.
To make this kind of short …the pain in my calves and feet has worsened alot of the past few years. I have tried dozens of medications but can’t take a high enough dose (due to side effects) to make a difference. I am currently on Lyrica 50 mg and Klonopin half miligram for sleep.

I also had a pain stimulator implanted last year but it was of no help at all sadly which was a huge disappointment.
My question is I now am having bad fatigue everyday which feels like it’s behind my eyes and forehead. It gets much worse when I do my photography (birds and nature etc.) it’s almost painful. I have had every eye exam you can think of- scans etc and there is nothing wrong with my eyes which they tell me it’s actually coming from my brain.
I seem to sleep well with the medications but wake up with this awful fatigue feeling.
Anyone else experience major fatigue that rest of sleep doesn’t help. It’s been a very stressful few months.
I could basically live a normal life if I didn’t have chronic ongoing fatigue…I don’t feel the incredibly horrible pain if I am standing or walking so I try to stay upright as much as possible. Night is when it’s bad and sometimes I can’t sleep at all.