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MCTD

Autoimmune Diseases | Last Active: Mar 31 1:15pm | Replies (32)

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@deedee4

I am 55.5 and was diagnosed with mctd last fall and the rheumatologist prescribed hydroxychloroquine 200 mg once daily and then increased my dose to 200 mg twice daily which I had to back off to every other day due to the ocular toxicity, BUT this drug really hasn’t helped me much. My severe brain fog , fatigue , stomach issues and throat soreness are still there and maybe even worse. I’m keeping a symptom log also. My rheumatologist referred me to another rheumatologist and I also have an appt now with a neurologist. I’m struggling to keep up with my job also. I don’t even think that my rheumatologist fully understands my symptoms and wonders why I would have this much brain fog :-/! Doesn’t help my cause

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Replies to "I am 55.5 and was diagnosed with mctd last fall and the rheumatologist prescribed hydroxychloroquine 200..."

I’m on my third rheumatologist!! To add fuel to this fire they also found that I had extremely high levels of copper in my body. Being tested for Wilson’s disease and five different specialists. The first one literally came out and told me that she knows I’m very ill but doesn’t know how to help me. So frustrating!!!