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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (346)
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@monicalu2626

Hi Colleen, I am recently diagnosed with SMZL in November 2024. Is there a Connect group I may join please?

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Replies to "Hi Colleen, I am recently diagnosed with SMZL in November 2024. Is there a Connect group..."
Lori, Volunteer Mentor | @loribmt | 4 days ago

Hi @monicalu2626 You found the perfect place to land in Connect to speak with members @stanleykent
@jam1962 @elainejarrett and others such as @andilynn @scsimpson @trevtwin @grand4 @caroldk @kayak4me @cdwilm27 @reneemp @pkh @theresad2 who have been diagnosed with SMZL. It can be so comforting and helpful to be able to speak with someone who is walking the same walk.
There are other discussions too, such as this one where you can join @trixie1 when she asked about:
Any new treatments for SMZL? What do you take for maintenance?
https://connect.mayoclinic.org/discussion/wny-new-treatments-for-smzl/
If you’d like to tag someone specifically just add their @name or click on the blue reply box in the comment you’re reading to reply to that person. They will get notified if their notifications are switched on.

Are you currently in treatment for your SMZL?

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stankent | @stanleykent | 4 days ago

monicalu
Hello... I'm glad you have reached the SMZL group.
Welcome and if you would like, share your experiences and diagnosis. As well as any questions you may have. There is a lot of information in the previous pages of this forum. As you will read this and what interests me is that SMZL sure seems to be different for everyone. The symptoms, tests performed, test results, diagnosis, and treatment sure seems to vary quite a bit.
Wishing you the best...

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