Replies to I am 80 yo as well. Blood disorder manifested into MDS/AML May 2023. Blasts 26%. By…

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Blood Cancers & Disorders | Last Active: Feb 21 6:33am | Replies (12)

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@dancouclanel4

I am 80 yo as well. Blood disorder manifested into MDS/AML May 2023. Blasts 26%. By Dec I was in terrible shape admitted to hospital with 50% chance of survival. Previously i had nearly 40 transfusions...it was maddening. Started vidaza with ventoclex in hospital on 7 Dec '23. On Xmas day first sign of recovery appeared so slightly. 7 days later all blood #'s were at acceptable levels. All had been close to zero. I even wrote my own obituary in preparation of the worst.
Vidaza/ventoclex tolerance has been amazing good. I'm on 14th cycle with AML in remission by decreasing dosages to 3 days on vidaza and 7 on Venetoclax.
I'm very grateful 🙏 for my oncology team, supporters and God, They have been amazing.
Every one is different often rqr two opinions. Other health factors play a role as well. DON'T GIVE UP....GET THAT SECOND OPINION. DEFY WHAT'S NORMAL. YOU ARE YOUR BIGGEST FAN. STAY STRONG IN SPIRIT AND PRAYER.

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Replies to "I am 80 yo as well. Blood disorder manifested into MDS/AML May 2023. Blasts 26%. By..."

Lori, Volunteer Mentor | @loribmt | Feb 19 10:10am

Thank you jumping into this emotional discussion, @dancouclanel4! Your story is so encouraging and I really hope this brings some much needed reassurance for @jenn2458 and her father to stay the course.

Chemo is never easy, and as you know, there are some difficult days. But I’m with you, it is so important to remain strong, positive and to not give up! We need to keep that spirit of endurance fueled with the energy hope can bring!

You’re a wonderful motivator! What are your favorite past times?

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