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← Return to Starting Orgovyx - how long for side effects to occur?
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Starting Orgovyx - how long for side effects to occur?
Prostate Cancer | Last Active: Oct 25 7:23pm | Replies (23)Comment receiving replies
I recently switched to Orgovyx after being on Lupron for 7 months. I experienced all the side effects on Lupron almost immediately: (loss of libido, ED, muscle loss, fatigue, hot flashes, 50% genital shrinkage since start of treatment, loss of body hair, skin irritations, bone loss, and higher emotional sensitivity). I'm in my second month of Orgovyx and do not see any real change in side effects. I agree we are all different in our fricken PCa and react differently. I switched to Orgovyx as it is to have a quicker T recovery period once Tx ends and lower CV events.
Everyone should get baseline measures at least for PSA, T, and bone density. I didn't get them until I advocated for them. PSA was 9.52 (3 months prior to Tx) and was reduced to 0.09 after 4 months on Lupron (pretty good). No baseline T or DXA taken. Finally got a T level 5 months later and it was 16 NS/dl - had no baseline T prior other than 10 years ago when my T was close to 1,000. Had a DXA scan a couple of months ago and significant deterioration detected. Will soon start an injection to improve bones. So hopefully with more consistent testing, Orgovyx will do me good.
I have a new oncologist now and he agrees we should be pro-actively monitoring my health.
Replies to "I recently switched to Orgovyx after being on Lupron for 7 months. I experienced all the..."
@pcrich
Had radical protatectomy surgery a year ago after having a PSA of 9.3 and Gleason score of 3+5. After surgery my PSA was .12 and 9 months later it went to .37 so started treatment of Orgovyx and proton radiation. My Dexa showed some loss and my T level was 523. I am 69 and in good health. I was on Orgovyx for 3 months before radiation started. I had fatigue before starting and it has gotten a little worst with the Orgovyx. I have been on proton radiation for 24 treatments with a total of 40. My last blood work showed my T at 11. Drs said they wanted it below 50, so Orgovyx is doing good. My PSA also dropped to .02 so that is doing good too. The fatigue has gotten worst with both drug and radiation. My calcium levels have actually gotten better. Gone from and 8.6 to 9.2 I am doing a Citrical supplement 600 mg and vitamin D in the morning and a calcium hydroxyapatite supplement 600 mg (100% bioavailability). I am also doing 20 grams of Collagen to help support bone structure.
Some of my additional issues are emotional. I am short tempered when I shouldn’t be. I have had some slight issues with dizziness and shortness of breath when I over exert myself. Overall, I feel pretty good and know this is temporary. Jeff
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Thanks for sharing your experience. I am doing 6 months adt and will switch to Orgovyx for my last 3 months of tx.