Dear @bsimm54
I am so glad you posted here to find answers. Brain injury is very complicated. While seeing a neurologist and getting an EEG is a good step, I don't think it is a complete picture.
Here are three ideas that you may find helpful:
1) I recommend searching for a neuropsychologist who specializes in behavioral issues related to a traumatic brain injury (TBI). They can assess and treat the cognitive and psychological impacts of brain injuries, including behavioral changes.
2) Another good tool is getting a psych evaluation. My son, who sustained a very serious TBI, just had a psych evaluation done. It was several hours long and took two days. It was very insightful. It helped guide us.
3) A fabulous resource for learning strategies and techniques for navigating the challenges of brain injury: bestconnections.org --BEST (Brain Education Strategies Technology) provides free online group sessions and recorded videos to help brain injury survivors handle life's challenges. It's a wonderful organization. The sessions are great for BOTH the survivor and any caregivers/family members to attend.
Summary:
1) neuropsychologist who specializes in TBI
2) psych evaluation
3) bestconnections.org for learning strategies
I hope you have family/support people who can guide you. You will always have a brain injury, but the brain injury doesn't have to always have you!
Best Wishes,
Maria Lara
Hi, @marialara - welcome to Mayo Clinic Connect. It sounds like you and your son have been through a lot with your son's severe traumatic brain injury. Looks like you've also learned many useful tips along the way as his primary caregiver.
I'm tagging a few members in the Traumatic Brain Injury support group who may have input or questions about what you shared about a neuropsychologist, psych evaluation and learning strategies. Please meet @gregd1956 @craigdunn @gwenrn74 @kayabbott @lakelifelady. Also, I'd love for you to meet @IndianaScott, who has talked about caregiving on this site. You also might be interested in checking out the Caregivers support group on Connect, https://connect.mayoclinic.org/group/caregivers/.
Would you share more about how the psych evaluation was insightful and helped guide you?