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My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Blood Cancers & Disorders | Last Active: Feb 19 9:45am | Replies (36)
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@jerrel

I have wondered as well but I had a different PCP at the time. I saw him regularly and he never mentioned levels.
I'm curious, my paternal grandmother died of leukemia when I was age 4. Might there be genetic factors?
Thank you for your prompt response.

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Replies to "I have wondered as well but I had a different PCP at the time. I saw..."
Lori, Volunteer Mentor | @loribmt | Feb 17 6:42pm

From my understanding PV doesn’t run in families. It’s usually caused by an acquired mutation in a gene. But reading through literature, there can be a genetic component in some families where an altered gene gets passed down which can leave family members with an increased risk of developing PV but not inherit the disease itself.
When you were diagnosed with PV were you tested for an underlying cause, such as a JAK2 mutation?

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