← Return to My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

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@loribmt

Welcome, @jerrel, though I see you’ve been a member for several years but this is your first time posting! ☺️ I’m glad you recovered so quickly from your stroke. I’m sure the physical therapy took perseverance on your part but it paid off.
Having phlebotomies regularly to keep elevated hematocrit lower with PV can affect your iron and electrolytes. Thank you for sharing what has helped to keep your levels somewhat back to normal…though not quite. It looks like your doctor is considering iron infusions to help with the depletion. We do have other members who have iron infusions after phlebotomies. A few have talked mentioned their how the infusions have worked for them in this discussion
https://connect.mayoclinic.org/discussion/polycythemia-vera-and-low-iron/
Does your hematologist oncologist feel that your PV may have been the cause of your stroke?

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Replies to "Welcome, @jerrel, though I see you’ve been a member for several years but this is your..."

I have wondered as well but I had a different PCP at the time. I saw him regularly and he never mentioned levels.
I'm curious, my paternal grandmother died of leukemia when I was age 4. Might there be genetic factors?
Thank you for your prompt response.