Craniotomy is 2/21/2025. Could use some encouraging words.

Posted by mlew @mlew, Feb 16 12:16pm

My meningioma was an incidental find this past December. Details: an extra-axial mass in the midline to the left superior and posterior parasellar region measuring 15 x 14 x 11 mm. Still small but located in a tricky area. Was able to get in pretty quickly with Dr. Laligam Sekhar at Harborview Hospital, Seattle. He gave me the option: watch and wait or go ahead and remove it since it is so close to a nerve and artery. At the moment, it is just touching the basilar artery. Given my age, 57, and excellent health, he recommended removing it. I know that Dr. Sekhar is one of if not the best neurosurgeon for the job, but I'm still a nervous wreck and could use some pep talks, please and thanks!

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Yes, it is a difficult decision to make. What your surgeon is telling you seems to make good sense. Your age and health are in your favor, and with the tumor being so close to artery and nerve I assume it could become harder to remove later on. Is he confident it can be completely removed? Best of luck in whatever you decide. If you feel he is an excellent surgeon, his opinion matters a lot.

REPLY

You can ask him for a referral to get a second opinion. He should NOT be offended and you should not be reluctant - they do this all the time.

Good luck

REPLY

Yes, it’s a difficult situation. What to do in these things is not always easy to know. In your case, I might get a second opinion. If it concurs, then get it done. If not, then take your choice. On the other hand, the preliminary waiting and worrying is likely to be the worst part of the surgery. At least I found my own recovery from the removal of a bleeding meningioma quite easy and uneventful. Why prolong the waiting and worrying when you can get it over with?

REPLY

Mine was against the optic nerve and pituitary gland and internal carotid arteries. 2.1 cm. They were able to get 95% out through my nose. You’re gonna do great!

REPLY

I feel very confident in my neurosurgeon. My biggest fear is the surgery itself and the recovery period. Not knowing what to expect. I've had a few weeks to prepare: been doing cardio about three times a week, some strength training, watching my diet, getting massage. Going into it like I'm in basic training. So thankful I have had some time to prepare and that it was discovered so early, no idea it was even there!

Also grateful for support and input from those who have gone through this- thank you!

REPLY

I had a craniotomy in September of last year to remove a recurring pituitary adenoma (I'm 60 and, other than the brain tumor and related pituitary issues, in pretty good health). The lead-up prior to surgery was indeed nerve-wracking -- the idea that people would be poking around my brain with sharp objects was hard to get used to, never mind thinking of what I might face post-op. The operation went smoothly and recovery was surprisingly quick and stress-free. You''ll be in good hands at Harborview; the neuro team there is excellent.

REPLY

I am surrounding you with prayers, positive thoughts and lots of support.

I would suggest that you give yourself a lot of grace pre and post op (especially because the steroids will really highten your emotions)

REPLY
@tbusker

I am surrounding you with prayers, positive thoughts and lots of support.

I would suggest that you give yourself a lot of grace pre and post op (especially because the steroids will really highten your emotions)

Jump to this post

THANK YOU!! Having a bit of a rough time this morning, so I appreciate this!

REPLY

Your post has generated so much good advice and words of encouragement. There is nothing I could add that hasn't already been said except to say I'll be thinking of you this Friday and wishing, for you, a speedy and smooth recovery.

REPLY
@tbusker

I am surrounding you with prayers, positive thoughts and lots of support.

I would suggest that you give yourself a lot of grace pre and post op (especially because the steroids will really highten your emotions)

Jump to this post

I just had surgery on 1.23.25 and I truly understand. The emotions leading up to my surgery were all over the place. Especially since I was shocked that I was having surgery again after a reoccurrence after 25 years.

REPLY
Please sign in or register to post a reply.