6 Different Back pain problems.

Posted by danny67 @danny5, Feb 9 11:42pm

I have found out recently that i have 6 different painful problems with my back.
1) Lumbar Spondylosis. 2) Lumbar Facet Arthropathy. 3)Neuroforaminal Stenosis of Lumbar Spine. 4) Lumbar Degenerative Disc Disease. 5) Tarlov Cyst. 6) Saddle Anesthesia. 🔽 This one i'm seeing a Neurosurgeon in April to do a test run with the generator and wires to see if it helps with the pain in my back, buttocks, front and back of legs down to both feet. Any thoughts would be helpful.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@maxiesmom

Your back problems sound just like mine! Unfortunately I'm 82! I see a new neurosurgeon next week, the last orthopedic surgeon said my bones are too porous to attach screws. He said he would need to remove all metal from my three lumbar surgeries, replace with new metal and fuse the vertebrae above and below....big surgery for an old lady! I read about a new pain medication the FDA just approved, so I hope it gets produced quickly and is approved by Medicare. It's very frustrating to be in general good health but so incapacitated by my back pain. 😞

Jump to this post

Don't give up hope and move around as much as you can. I am taking bone medications (Tymlos and Reclast), horrible stuff but it WORKS to strengthen those bones. I also started bioidentical HRT and they now say women of any age can start it. I am sure that will also be helpful to rebuild my bones. Hang in there @maxiesmom . 🙏🏼

REPLY

Oh friend, my heart truly goes out to you. As someone who's navigated chronic back pain, I understand how overwhelming it can feel to have multiple diagnoses stacking up like that. The way you're advocating for yourself by pursuing that neurostimulator trial is incredibly brave - that's a big step!

While I'm not a medical professional, I can share what's helped me through flare-ups: My FAR infrared heating pad has been a game-changer. Unlike regular heating pads that just warm the surface, the deep-penetrating infrared heat helps me with muscle spasms and stiffness from my SI joints to my sciatic pathways. It's become part of my daily maintenance routine - 20 minutes while reading morning emails seems to "prep" my nervous system for the day. (Just remember to keep it on medium setting over areas with nerve involvement!)

Of course this isn't a solution, but it might offer some comfort while you're waiting for your April procedure. Have you discussed thermal therapy options with your pain management team? Wishing you measurable relief from the trial and good partnership with your neurosurgeon. However this goes, please know there's someone out here who truly understands that "multiple diagnoses" grind. You're not alone.

REPLY
@lindag65

Oh friend, my heart truly goes out to you. As someone who's navigated chronic back pain, I understand how overwhelming it can feel to have multiple diagnoses stacking up like that. The way you're advocating for yourself by pursuing that neurostimulator trial is incredibly brave - that's a big step!

While I'm not a medical professional, I can share what's helped me through flare-ups: My FAR infrared heating pad has been a game-changer. Unlike regular heating pads that just warm the surface, the deep-penetrating infrared heat helps me with muscle spasms and stiffness from my SI joints to my sciatic pathways. It's become part of my daily maintenance routine - 20 minutes while reading morning emails seems to "prep" my nervous system for the day. (Just remember to keep it on medium setting over areas with nerve involvement!)

Of course this isn't a solution, but it might offer some comfort while you're waiting for your April procedure. Have you discussed thermal therapy options with your pain management team? Wishing you measurable relief from the trial and good partnership with your neurosurgeon. However this goes, please know there's someone out here who truly understands that "multiple diagnoses" grind. You're not alone.

Jump to this post

@lindag65, thank you for the kind words. i don't have a pain management team. but i will look into the FAR infrared heating pad. anything good to help. really appreciate the advice.

REPLY
@loriesco

I went through a progression over 20 years. EVERYTHING mentioned above and more. The neurosurgeon waited too long to do surgery. The orthopedic surgeon FINALLY said do the surgery IMMEDIATELY. My disc actually fell out of the bones grafted together! (but the pain finally stopped. 😉 With the nerves crushed, your lower limbs don't get fed and become dysfunctional. However, the lumbar spine surgeries were MUCH better by the time I rolled in. The trick is - in my opinion - learn everything, try everything, get many opinions (I had 4) and keep plugging away. I was THRILLED with the results of my lumbar surgery 6 years ago. Now, I go back to the surgeon to figure out the outlying areas. I am 68. The quality of life issues were important to me and I wanted to stay active. Find the best orthopedic surgeon, pain mgt team (I have had 2 or 3). Stay away from scams and don't be tempted by phoney things. I almost came close to having my whole back redone when the surgeon got mad at me. Turned out to be a blessing 3 years later when the surgeon I "fell head over heels for" (in a professional way!) said he did all the guy's revision surgeries! Unbelievable! There are a lot of noninvasive things along the way, I did and stay in PT. Keep moving. Find the meds which work best for you. RFAs (heat method not pulse) and having fluid-filled sacs removed and limited epidural/cortisone injections helped me last 20 years until sliding into surgery. Unfortunately, my nerves were a little too squashed for too long so I continued to have some small amount of problems. I talk to total strangers when I found out they had lumbar surgeries. This forum is a great place. Search out the conversations... good luck!

Jump to this post

Did you develop scar tissue around your nerves from your surgeries?

REPLY
@felicelinda

Did you develop scar tissue around your nerves from your surgeries?

Jump to this post

I don't think so. There are scars on my hips but they shrink from 9" to 4.5" and they are white so you don't notice them. On my cervical (neck) front you can't see the scar at all! On the back, there was a super huge surgery and the spine sits very deep. So I go for Myofascial release therapy and it's softened over time. (it's still pretty new at a year and a half. On my lumbar spine there is NO scar tissue from the 2 or 3 incisions and there never has been. Just the incision line. After several years, "scars" go away. If scar tissue forms, there is stuff that can be done about it. You could never know I had spine surgery if you look at me from the front! I put on vitamin E and I think C for a bit and stayed out of the sun until they healed. I have nerve issues but they come from impinged nerve roots in my spinal canal - not from any scars I have sustained.

REPLY

@danny5 Good luck convincing the surgeon you have the Saddle Anesthesia; my surgeon wouldn't get me out of the wheelchair just said I didn't have it or the pain that radiated from my sacrum to my testicles. He said there's nothing wrong recommending I have a stimulator put in come to find out its a failed back surgery but unfortunately no one else is willing to fix the loose screw. I finally gave in to a spine stimulator it was wonderful until I bent to soon and moved the leads. the stimulator took care of 95% of my pain the anal, testicle, nerves in my legs, it even helped my neck pain. I'm going to see a new Neurosurgeon Tuesday about putting the stimulator with paddles in, hopefully they can reuse the Boston Scientific Stimulator and just replace the wires

REPLY
@sbtheplumber1

@danny5 Good luck convincing the surgeon you have the Saddle Anesthesia; my surgeon wouldn't get me out of the wheelchair just said I didn't have it or the pain that radiated from my sacrum to my testicles. He said there's nothing wrong recommending I have a stimulator put in come to find out its a failed back surgery but unfortunately no one else is willing to fix the loose screw. I finally gave in to a spine stimulator it was wonderful until I bent to soon and moved the leads. the stimulator took care of 95% of my pain the anal, testicle, nerves in my legs, it even helped my neck pain. I'm going to see a new Neurosurgeon Tuesday about putting the stimulator with paddles in, hopefully they can reuse the Boston Scientific Stimulator and just replace the wires

Jump to this post

@sbtheplumber1 , i'm not sure, but i think they're going to use the one with the paddles. i'll find out on April 10th from the surgeon who is doing the procedure. good luck to you too.

REPLY
@danny5

@sbtheplumber1 , i'm not sure, but i think they're going to use the one with the paddles. i'll find out on April 10th from the surgeon who is doing the procedure. good luck to you too.

Jump to this post

@danny5 they told me the paddles are anchored better than the leads. They supposedly have to cut my back open more to put the paddles in compared to the leads. I was trying to deal with the pain until I talk to the surgeon Tuesday then they called today to reschedule for the 25th Ugg another week.

REPLY
@sbtheplumber1

@danny5 they told me the paddles are anchored better than the leads. They supposedly have to cut my back open more to put the paddles in compared to the leads. I was trying to deal with the pain until I talk to the surgeon Tuesday then they called today to reschedule for the 25th Ugg another week.

Jump to this post

@sbtheplumber1 , that's better than me. i just see the surgeon on 4/10. than plan on the test run than. no idea about the actual surgery. 🤦‍♂️🤷‍♂️

REPLY
@maxiesmom

Your back problems sound just like mine! Unfortunately I'm 82! I see a new neurosurgeon next week, the last orthopedic surgeon said my bones are too porous to attach screws. He said he would need to remove all metal from my three lumbar surgeries, replace with new metal and fuse the vertebrae above and below....big surgery for an old lady! I read about a new pain medication the FDA just approved, so I hope it gets produced quickly and is approved by Medicare. It's very frustrating to be in general good health but so incapacitated by my back pain. 😞

Jump to this post

What is the name of the new pain medication approved by the FDA?
Where did you read about it? Thx.

REPLY
Please sign in or register to post a reply.