Anyone have intermediate Macular Degeneration
Hello,
I'm interested in hearing people IMD.
I like reading people's stories, how they deal with it, what they are experiencing and if they've learned of new treatments or cures coming down the pike.
I pray every day that I can grow old while maintaining my good central vision. I pray that I am young enough to one day benefit from more permanent treatments, less invasive treatments, and even a cure. Research has been ongoing for such a long time that sometimes I think there may never be a cure. I will not give up nor will I stop praying.
I hope we can get a chat going here. ❤️
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Using ChtGPt for mmedical advice:
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Please find an up-to-date and reliable ophthalmologist who specializes in macular degeneration
I reread your above post regarding 23 and me. That one is a swab that is mailed away, correct?
You are 75, have had intermediate AMD for at least 10 years? And did not have it in your 50's. If you were diagnosed at 65 with intermediate AMD, how old were you when you were diagnosed with early stage AMD? Is 65 years old the age in which you became aware of the AMD for the first time? I'm just curious if you were getting regular dilated eye exams in your 50s and even younger.
I'm just trying to fit all of this new info into my brain and make sense of it.
I cant remember I was working as temp traveling and no doctor visits. If you were diagnosed with the pattern d. disorder at Wilmer you don't have AMD. Please go back to them and confirm. All this discussion is not useful to you then.
You dont have AMD if Wilmer says its pattern dystrophy. It’s a completely different disease and it does take decades to get worse according to chatGPT:
Advanced diagnostic tools, such as fundus autofluorescence (FAF), optical coherence tomography (OCT), and genetic testing, can aid in distinguishing between the two conditions. For instance, pattern dystrophy often presents with specific patterns of pigment deposition and may show characteristic findings on imaging studies that differ from those seen in AMD. Genetic testing can identify mutations associated with pattern dystrophy, providing a definitive diagnosis.
NCBI.NLM.NIH.GOV
In summary, while pattern dystrophy and AMD share overlapping features, careful clinical evaluation combined with advanced imaging and genetic testing can help differentiate between the two, ensuring appropriate management and
You're telling me to find an opthalmologist who specializes in Macular degeneration??? Where the hell did that come from??? I'll have you know that I have an excellent retina opthalmologist who specializes in diseases of the macula such as Macular Degeneration. I also have a reputable primary opthalmologist who once worked for the Mayo clinic. And I have also been seen by a retina specialist at the Wilmer eye institute at John's Hopkins University. You're the one telling me you don't have all of the particulars about your MD. I only mentioned that doctors are not always forth coming with their diagnosis. That doesn't mean I'm some backhill idiot who hasn't been seen by reputable and educated ophthalmologists. Or that I haven't been doing research and asking questions at my appointments.
I'm sorry I tried to share with you that treatments and research have come a long way probably even since your mom was here and blind from AMD.
He only said "likely" a pattern disorder but could not tell me which one. And we'll have to watch and see how shapes over time. But my notes from him still have AMD in them. I've had several opinions and not one agrees with Wilmer.
I can't live on a let's see if it takes shape.
And again another hereditary disease unknown by anyone on either side of my family.
Why is it that none of the other doctors agree? I've done my research on pattern dystrophy and there are a bunch of them. But I have no clue which Wilmer thinks I have. There's no cure for it either but some of the AMD treatments benefit it later down the line. But, even the other doctors who diagnosed me with intermediate AMD told me the prognosis is 20-30 years.
Also, I've had all of that testing you mention above. The OCT, the FAF. And I have two different outcomes.