1. < Blood Cancers & Disorders

MGUS and pain

Posted by dducote @dducote, Feb 15 3:15pm

I was diagnosed with MGUS the Fall of 2023. Recently I am experiencing severe pain in my right knee, left ankle and now my neck/shoulders. Has this happened to anyone else? And does the pain relate to the MGUS?.

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kayabbott | @kayabbott | Feb 16 8:42am

It would be good to check with you PCD and a neurologist on this. Neuropathy can come with MGUS, but that is generally in the extremities. I have polyneuropathy, which is likely due to my celiac rather than MGUS; it is mainly loss of sensation in my hands and feet, including feeling less pain. A full evaluation could give your some answers and treatment for the causes. I'm 70 and spend a lot of time on diet, exercise, and other healthy stuff, just to balance out my various body parts that conspire against me.

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dducote | @dducote | Feb 16 9:16am
In reply to @kayabbott "It would be good to check with you PCD and a neurologist on this. Neuropathy can..." + (show)
@kayabbott

It would be good to check with you PCD and a neurologist on this. Neuropathy can come with MGUS, but that is generally in the extremities. I have polyneuropathy, which is likely due to my celiac rather than MGUS; it is mainly loss of sensation in my hands and feet, including feeling less pain. A full evaluation could give your some answers and treatment for the causes. I'm 70 and spend a lot of time on diet, exercise, and other healthy stuff, just to balance out my various body parts that conspire against me.

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Thank you. I’m
Going to contact the doctor now yo schedule an appointment

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catartist | @catartist | Feb 16 10:32am

I was told MGYS doesn’t bring on symptoms??? Just something to watch? Did Dr tell you feet and hand myopathy is due to it!? ( I have that - due to other things I thought)

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dducote | @dducote | Feb 16 1:50pm

I don’t have much information. I’m supposed to have a blood test every 6 months.,w it’s free first blood work, the doctor told me the numbers were ere fine and gone back in 6 months.

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kayabbott | @kayabbott | Feb 16 4:52pm
In reply to @catartist "I was told MGYS doesn’t bring on symptoms??? Just something to watch? Did Dr tell you..." + (show)
@catartist

I was told MGYS doesn’t bring on symptoms??? Just something to watch? Did Dr tell you feet and hand myopathy is due to it!? ( I have that - due to other things I thought)

Jump to this post

MGUS is considered asymptomatic and with a 1%/year risk of progressing to SMM or MM. However, there can be symptoms such as neuropathy in some people, especially if the MGUS proteins increase. I was diagnosed with MGUS 8 years as a follow up to my polyneuropathy diagnosis, but it also be part of celiac. Either way, the neuropathy is pretty minor in me. I collect autoimmune diseases so figuring out what causes what is like solving a puzzle.

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catartist | @catartist | Feb 16 5:34pm
In reply to @kayabbott "MGUS is considered asymptomatic and with a 1%/year risk of progressing to SMM or MM. However,..." + (show)
@kayabbott

MGUS is considered asymptomatic and with a 1%/year risk of progressing to SMM or MM. However, there can be symptoms such as neuropathy in some people, especially if the MGUS proteins increase. I was diagnosed with MGUS 8 years as a follow up to my polyneuropathy diagnosis, but it also be part of celiac. Either way, the neuropathy is pretty minor in me. I collect autoimmune diseases so figuring out what causes what is like solving a puzzle.

Jump to this post

Ahhhh!. Thanks for clarity! And I get you! I have several too … love ‘collecting’. Lol
Bless you and keep sense of humor!

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