Prednisone side effects on partner

Your situation, and his, are tough ones! Since he got so sick from the UC, it’s essential for his disease to be controlled. The IV infusion, if a biologic monoclonal antibody, will take a few doses before it becomes effective. Once that occuhe should be able to taper off the Prednisone. Prednisone can definitely cause personality changes, irritability, etc. I think you are doing the right thing when he gets mean or nasty. Getting away from him gives him a chance to cool off and protects you from being hurt by his behavior. I would discuss this with his doctor. There are several good drugs for UC that might work faster to allow him to get off the Prednisone or at least on a lower dose. If his doctor knows what is happening, an alternative treatment might be suggested.
It sounds like you are being very patient and continuing to help him in spite of his undesirable behavior. Give yourself credit for that! Hopefully this is a temporary situation and will be resolved soon with more aggressive treatment.

I was on high dose prednisone for almost a year for severe Uveitis with Psoriatic Arthritis. Along with the prednisone came a short temper, no sleep with severe prednisone induced insomnia (which doesnt help mood), moon-face, the hump on back of my neck, and 35 lb weight gain. I wish I had felt comfortable about starting biologics sooner so I could stay off the prednisone. I first tried Remicade, but had a reaction which caused me to delay any other biologic treatment. After about 6 months at that point, I started Humira…a life-saver! All the bad temper, and other side effects eventually went away (not all the weight gain, 🤷‍♀️). I suggest starting a biologic treatment as soon as you can. Your husband will feel much better…and so will you. Get your lives back!

Thank you for sharing your story, I’m so sorry you had to go through that! I have multiple autoimmune diseases including ankylosing spondylitis, but haven’t had to go on prednisone so I can’t imagine on top of everything having to take a medicine that makes you feel bad too. My husband started Remicade at a lower dose 4 months ago and went off prednisone for a week and he became incredibly anemic again. So they had to reschedule a much stronger dose. I know his doctor mentioned Humira, but the insurance won’t cover it until they see whether that Remicade is not working.😑 This last Friday he started back, (Day1) on the high dose of Remicade. So I guess we’ll see.🤞🏻🤞🏻 I know and see the light at the end of the tunnel, it feels close! I hope your health continues to improve with Humira.🙂

I’m so sad to read this and so glad you’re sharing. I’ve been on prednisone for multiple anutoimm diseases for almost 9 months and wow, I know it affects me and my husband. I worry about him as a caregiver all the time. For me it’s insomnia and cushings symptoms so even though the prednisone helps with pain and mobility, I’m still so sedentary. That’s really hard on both of us. I do hope his doc is helping with the personality changes, aggression, and sundowning. There are meds and social supports that can help so much, I think. Especially with your own health issues, it’s important to take care of your stress levels too! It’s so good you understand it’s not really him & the impact is real. Strength to you!

I hope since you posted this that life has gotten easier for your husband and you.

My husband was diagnosed with UC late in 2023, he was put on mesalamine which fast tracked an horrific flare, a 50 lb weight loss in 2 1/2 months, a hospital stay with multiple transfusions. They prescribed Humera and a high dose of prednisone. At first he was weepy and clingy (very out of character) and then the anger and meanness came. Like you, I gave him space. We are lucky enough to live on the pacific coast with great beaches so I spent a great deal of time there collecting agates. The Humera was working well enough that he was able to phase out the prednisone thankfully. The Humera stopped being as effective and he is now on renvoq which seems to be working and life is almost back to normal.

My issue is that, while I am acutely aware that he was going through something horrible and painful and on mind altering drugs, I am left feeling resentful of his treatment of me during that time.
I’m having flashback memories of things he said and did that I suppressed.
I feel awful and guilty having these feelings.
Being a caregiver is such hard and important work.

I have found ‘it’ never really ends. I am addicted to Prednidone low dose - can not get off ( daily over 30 years. ) It makes me feel like me. Without it I am over come with pain and not ‘myself’. ’ onward with a smile in spite!

If it’s possible to take all Prednisone before lunch it will allow him to sleep and calm the exaggerated energy effects.

My husband got septic each time he had colon surgery. On a ventilator both times for a month.
No Dr makes the person or family aware of the cognitive changes from the illness or medications. Other people including attorneys took advantage of our family.
Noone prepares or protects the caretakers when patients decide they di not like you anymore.

I am so so sorry you and /have to go through all that!

Out of the blue, about two months after my husband finally tapered off; out of the blue, I’m now going through some serious health issues.
With some twist of fate now I am on high doses of prednisone.

I do have to say being on the other side as the caretaker; and all the support and resources I’ve received from these support groups, i know my triggers and changes. I know how to advocate for my self so my husband, family & loved ones know my 10 commandments of prednisone. I hope you husband is feeling better!

Way to take the bulls by the horn and turn lemons into lemonade. Prednisone does save life’s. I’m glad it helps with your pain!