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I have had lifelong connective tissue disease and weakness with nothing diagnosed...at age 53 I'm finally piecing things together from heart issues, nerve malfunction, endocrine/hormonal imbalances, early age osteoporosis, tarlov cyst disease and joint problems...can you direct me on where to do or who to see for research into if i have some HSD genetic component? My quality of life has been poor since age 35 onward, and hitting menopause age severely increased all pain and disease states.

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Replies to "I have had lifelong connective tissue disease and weakness with nothing diagnosed...at age 53 I'm finally..."

@tkdesign, be sure to let your specialist(s) know that you are interested in clinical studies. They will know what trials are available in their area of specialty that may be right for you.

Here is a list of EDS related studies at Mayo Clinic https://www.mayo.edu/research/clinical-trials/search-results

You can also contact Mayo Clinic Research to discuss possible studies:
Non-cancer clinical studies questions
Phone: 800-664-4542 (toll-free)
Contact form https://www.mayo.edu/research/forms/clinical-trials