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Myeloma newly diagnosed

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (10)

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@rmbruins

I am so sorry you had to hear the word: "uncurable." 15 years ago I, too, heard those words when diagnosed with Follicular Lymphoma and panicked. My oncologist and my support system talked me off that ledge. At the suggestion of another FL patient, I requested a clinical trial. I mention this as this trial paid for ALL my costs.
Recently I have started treatment for my first relapse with a newer immunotherapy drug, "Gazyva," not available during my first round of treatments. New medicines are being developed all the time and now I am experiencing that gift. Back to finances, in my recent pre treatment visit with the cancer center's social worker, I found I was eligible for support from the Leukemia & Lymphoma Society, another gift.
Closing words from Emily Dickenson: "Hope is the thing with feathers that perches in the soul, and sings the tune without the words, and never stops at all." Hopeful for you.

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Replies to "I am so sorry you had to hear the word: "uncurable." 15 years ago I, too,..."

@rmbruins Welcome to Mayo Clinic Connect! Your story is one that several others might echo, definitely. New treatment options are being developed all the time for blood cancers.

Perhaps a better word is "containable" rather than "incurable". What do you think?
Ginger