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Myeloma newly diagnosed

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (10)

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@treehouse5437

Hello-

First treatment this coming week- those that are/were working at start of your MM treatments did it help to take time off. Could do short or long term disability from work- short would be eight/ten weeks.

Presents symptoms before treatment are fatigue from anemia and few minor aches now and then... nothing bad. 🙏🏻
Late 50's

Thank you.

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Replies to "Hello- First treatment this coming week- those that are/were working at start of your MM treatments..."

I too am in my late 50s. I was diagnosed with MM a little under two years ago. Following some time with anemia, ancouple of fractures that did not show up on X-ray, and severe back pain. I was in the hospital for a week, started treatments there. And went back to work following the hospitalization until I got my stem cell transplant. I found work to be helpful although I’m not sure my judgment was the greatest. I also felt the need to save paid time off and FMLA time for the time of stem cell transplant, which required a lot of time off. Everyone is different of course, and I’m lucky to have a supportive job. If I had not, I would need to take time off to deal with it all after I was newly diagnosed . My initial treatment was difficult-dizziness, fatigue, cognitive impairment. They shifted things around a bit once I got my genetics back and actually I ended up on routine that was more manageable. I’m sorry you are in this whirlwind and really would like to be helpful. Support groups do you have a ton of tips and tricks and can be profoundly reassuring. I am working 30 hours a week now, I have a a very flexible job, which I need to deal with everything. And of course worries about insurance coverage are always looming. .Hope you keep the questions coming.Take care.