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What helps longhaulers dealing with Chronic Fatigue?
Having just been through a battery of tea s for my NIH study at UNMC and a visit with my GP, it turns out that there is no answer for my CF, brain fog and racing heart. I have had Covid 4 times and no real serious symptoms other than fatigue and congestion. Blood work has been normal as well as brain scans, heart tests etc.
I used ozepmpic injections 6 weeks ago and eliminated refined sugar and junk food from my diet and dropped 20 lbs hoping that would help but didn’t notice any change in the fatigue.
my GP suggested citalipram which I just started but other than than he had no suggestions. I still stopped drinking 2 years ago and was hoping to enjoy a better life and now this has gotten in the way.
Any thoughts or ideas?
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Did you have to go there? How many days?
Could you please provide a web link to this "fatigue program"? Is it covid specific, or a more general fatigue program?
Been there, done that, and barring a miracle medical breakthrough, the researchers and doctors appear to be years away from fully understanding, let alone treating, long covid fatigue and other issues. Toward that end, we're pretty much on our own finding "alternative" (medical and non-medical) options that may or may not work for each individual. I will tell you that red light therapy (RLT), also known as photobiomodulation is one of the few research-based therapies that has helped me with fatigue, provided I use it daily for 20 minutes. There are a lot of "things" marketed as RLT. Be very careful as only a handful have actually been independently evaluated in medical studies, and most are foreign knock-off goods with no proof of usefulness. Studies published in peer-reviewed journals will identify which RLT devices were used and how effective they were. I used one of the RLT panels at a local spa before purchasing one; yes, it is very effective, for me, and others I've recommended them to. I suggest looking at Platinum Therapy Lights, which have been used in some studies. Related to long covid, see: https://platinumtherapylights.com/blogs/news/red-light-therapy-for-inflammation Doctors are relatively clueless about alternative therapies, but always check with yours before engaging in them.
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3 ReactionsI too suffer from unabated fatigue as a result of long Covid. And I have tried everything under the sun, including nicotine patches, Prozac, acupuncture, all manner of supplements, and various dietary regimes--all to no avail. I'm now hoping for an appointment with the National Jewish Health in Denver, which has resources dedicated to long Covid, but at the moment it's a waiting game. I'm back on the patches, hoping those might help with the fatigue, and will let you know.
It's really all a huge mystery. I wish I had some solutions for you.
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2 ReactionsI would like to see the link too
Hello. I too have long covid with intense fatigue. What has helped me is low dose Naltrexone and Abilify that I got from the Stanford Long Covid/ME CFS clinic. Two years ago I could not walk around the block and could not use a computer, now I can hike and even do short backpack trips (resting along the way) and use a computer most of the day.
I wish you all the best
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3 ReactionsCan you tell us or give a link to the specific product you are using? Thank you!
I use a Biomax900 series from this manufacturer, the only FDA Certified RLT panel that has been independently evaluated and the results published in a peer reviewed journal.
https://platinumtherapylights.com/
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3 ReactionsJust want to weigh in with a point about nomenclature.
Chronic fatigue is often an accompanying symptom of Long Covid. It's a symptom that accompanies numerous medical conditions.
Chronic Fatigue Syndrome (CFS), on the other hand, is a specific diagnosis and condition that has no direct relationship with Covid, per se. It is also referred to as Myalgic Encephalomyelitis (ME), in places other than the U.S.
It, too, is suspected of being a type of post-viral phenomenon, although it has proven difficult to truly qualify and treat, and can have numerous accompanying symptoms.
But please do not label the chronic fatigue many of us experience post Covid as "Chronic Fatigue Syndrome", as it's a separate phenomenon, despite many overlapping symptoms.
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4 Reactions@seidholz, @jsg12206 here is more information to the program @mitfit was referring to:
- Fibromyalgia and Chronic Fatigue Clinic at Mayo Clinic https://www.mayoclinic.org/departments-centers/fibromyalgia-and-chronic-fatigue-clinic-minnesota/overview/ovc-20485870
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