Bone Coach - How do you know it works?
I have seen several people here joined Bone Coach. How do you know your osteoperosis is better. The testimonials talk about general health improving which adherence to any healthy diet may have done the same.
There is no science shown. It's pricey but worth it if it works.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
There are also great videos on YouTube by Dr. Ben Leder: endocrinologist at Massachusetts General and a professor at Harvard Medical School.
@imay how long will you be on tymlos and what is your long term plan for the next 20 years after tymlos? I have read that after tymlos and/or forteo it is important to go on a bisphosphonate and fosamx is not strong enough meaning the only choice is ReClast infusion. I’m unsure what’s next after the infusion but I also read if you don’t do that you lose the gain and even go below what was gained from the tymlos or forteo. Bisphosphonate is exactly what I chose not to take 2 years ago when my Tscores indicated osteoporosis. I just turned 66 lastbJuly my hip score was -2.6 and spine -3.3 tymlos forteo or evenity was prescribed by my endo to reduce fracture risk but the side effects seem worse than the disease. How did you decide to turn to Tymlos and again what’s next. Thank you for your input.
I had no noticeable side effects with forteo or evenity. Gains with both but best gains with evenity. The side effects that scare the hell out of me are compression fractures from untreated osteoporosis! My individual route on this bone journey.
Too many people call themselves Bone Coaches. Some of the information they provide is good, some is just garbage. Then they push to sell you all kinds of products. They get their friends on for so called interviews/free workshops…trying to sell more products or subscriptions. It’s getting to be a whole network exploiting seniors in need of genuine help. Be your own advocate. Do your own research and weed out the garbage. Good luck to us all.
I would love to know how you are doing on Tymlos and if you titrated gradually up to the full dose? Thanks so much.
I am on dose #65 of Tymlos. I have stayed at 7 clicks because I have 3 very busy months ahead. I may try 8 after that but this may be “my” dose level. Only 1 day I skipped a dose bcuz I felt my heart was racing. I took a day off then did my 7 out of 8 the following day. I’m not willing to feel like sh..! I will adjust as I need to strike the right balance. I am also taking HRT and am waiting for blood tests I just did to ck hormones levels. I also have a REMS scan in March. I will post results as I know.
@mtran88788
< https://connect.mayoclinic.org/member/00-9b2c842cc8b8022b334111/?utm_source=connect.mayoclinic.org&utm_medium=email&utm_campaign=emailcampaign&utm_content=new_comment_reply_intro_userlink>
You should get an award for your comments
on how services and products are being pushed
by various websites and 'influencers'.
I am appalled at what I see lately on the web.
Eventually I had that 'haha' moment and am very selective
which webinars to attend - and have unsubscribed
from many.
I subscribe to very few:
I like and put Osteoboston on my ok list.
We are here on this Forum
to help and give back views of our own experience:
However -
I would say - everyone should do due diligence, approach these websites
with a double healthy dose of skepticism.
Research as much as you can, from as many sources as possible.
Some, many websites and influencers profit from you –
inverse to the help you are going to get.
And put a zipper on your wallet. Maybe even a lock.
Thanks so much. Have you had any nausea or vertigo or headaches? And did you gradually get to 7 or did you start out at &? I'm very grateful for your help.
No problem-I keep a journal for this very reason. Day one was 2 clicks and I added clicks daily until up to 5 by day 7. Up to 6 clicks by day 12. At 6 I had slight headache and stayed at 6 until day 36 then went to 7 clicks. It makes a difference if I’m not well hydrated (water with mineral salt) and I always eat b4 the shot. Then I need to be moving: walking, chores, etc. after the shot. I personally do NOT feel good if I lay down. I can “feel” it but nothing really bothersome. I keep my mind and body occupied first couple of hours. I could do 8 but I want to feel optimal next couple of months so will go up to 8 in May. If I don’t feel ok after a few days I will go back to 7. No specific symptoms other than feeling a “little off” on occasion. Hope this helps! I tend toward low blood pressure so I think the electrolytes help.
I so appreciate your time and generosity. Can you describe specifically the electrolytes you use? And did you plan your "click" schedule or did your doctor?